FPWR Blog

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22 Years of Hope: Kathryn McGhee's Dedication to Finding PWS Treatments
Kathryn McGhee has been an active member of our PWS community for 22 years, participating in... Read more >
Source: FPWR Blog | Published: July 7 2024 - 09:00 AM
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FPWR Joins the Rare Disease Diversity Coalition
Improving diversity, equity, inclusion, and accessibility (DEIA) in PWS clinical research is a... Read more >
Source: FPWR Blog | Published: July 7 2024 - 08:45 AM
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Soleno Therapeutics Submits New Drug Application for DCCR
We are excited to share the news that Soleno Therapeutics has submitted its New Drug Application... Read more >
Source: FPWR Blog | Published: June 6 2024 - 06:53 AM
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Katie and Adam Larson: A Decade of Dedication to Finding Treatments for PWS
Since first tapping into our community 12 years ago, Katie and Adam Larson have been ready to do... Read more >
Source: FPWR Blog | Published: June 6 2024 - 08:30 AM
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Empowering Diversity and Inclusion for the PWS Community
In a significant step towards fostering equity and inclusion within our Prader-Willi syndrome (PWS)... Read more >
Source: FPWR Blog | Published: June 6 2024 - 08:52 AM
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Webinar: What You Can Expect if You Participate in TEMPO, a Phase 3 Trial of Pitolisant
If your loved one with PWS struggles with daytime sleepiness, you may be interested in learning... Read more >
Source: FPWR Blog | Published: June 6 2024 - 03:24 PM
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Understand Drug Development for Rare Diseases: Free Online Series
Have you ever wanted to know more about the drug development process and how patients and patient... Read more >
Source: FPWR Blog | Published: June 6 2024 - 09:30 AM
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Why We Are HopeFULL for the Future of People with Prader-Willi Syndrome
Prader-Willi syndrome (PWS) is a complex genetic disorder with a range of challenging symptoms,... Read more >
Source: FPWR Blog | Published: June 6 2024 - 11:07 AM
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Early School Years — Ages 3-8 [2023 Conference Video]
In this 1 hour and 52-minute video, Dr. Anastasia Dimitropoulos of the PRETEND Program, Staci... Read more >
Source: FPWR Blog | Published: June 6 2024 - 09:30 AM
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FPWR Genome Study Insights: Caregiver Views on Pharmacogenomics for PWS
The FPWR Genome Study, full title “Whole Genome and RNA Sequencing Analysis in Prader-Willi... Read more >
Source: FPWR Blog | Published: May 5 2024 - 09:30 AM
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Recent Advances in Drug Development Bring Treatments Within Reach for PWS
Exciting developments are sweeping through the PWS community, spotlighting two potential... Read more >
Source: FPWR Blog | Published: May 5 2024 - 10:00 AM
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FPWR Announces 1st Round of 2024 Grants
We are pleased to announce the recipients of our first round of grants for 2024, totaling more than... Read more >
Source: FPWR Blog | Published: May 5 2024 - 08:15 AM
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Advancing Prader-Willi Syndrome Care With the New PWS Profile Tool
PWS impacts many aspects of our children’s lives. The hallmark struggle for those affected by PWS... Read more >
Source: FPWR Blog | Published: May 5 2024 - 10:00 AM
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PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: May 5 2024 - 09:05 AM
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