FPWR Blog

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Positive Preliminary Results with Setmelanotide and Plans for Evaluation of RM-718 for PWS
Rhythm Pharmaceuticals has shared positive preliminary results from its exploratory Phase 2 trial... Read more >
Source: FPWR Blog | Published: December 12 2025 - 04:00 AM
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One Small Step 2025: A Record-Breaking Year of Impact
One Small Step set out with a bold goal in 2025: raise $250,000 for Prader-Willi syndrome research.... Read more >
Source: FPWR Blog | Published: December 12 2025 - 02:30 PM
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Self-Care for Caregivers: Your Well-Being Matters
Caring for a child or adult with Prader-Willi syndrome (PWS) often means juggling medical... Read more >
Source: FPWR Blog | Published: December 12 2025 - 07:00 AM
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Reflecting on 2025: A Year of Breakthroughs, Milestones, and Momentum
As we wrap up 2025, we’re celebrating a year shaped by real progress… scientific breakthroughs, new... Read more >
Source: FPWR Blog | Published: December 12 2025 - 02:29 AM
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Save the Date for FPWR’s 2026 PWS Family Conference & Workshops
Mark your calendars and join us October 9–10, 2026, as parents, caregivers, and medical... Read more >
Source: FPWR Blog | Published: November 11 2025 - 11:00 AM
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Behavior and Flexibility in PWS: Expert Advice for Families
Behavioral challenges are among the most difficult aspects of Prader-Willi syndrome (PWS). These... Read more >
Source: FPWR Blog | Published: November 11 2025 - 05:30 AM
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FPWR Awards More Than $2.1 Million in Research Grants in 2025
We are pleased to announce the recipients of our second round of grants for 2025, totaling $925,117... Read more >
Source: FPWR Blog | Published: November 11 2025 - 04:45 AM
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Caregiver Perspectives: Insights on the COMPASS-PWS Trial
Background In response to Acadia Pharmaceuticals’ announcement that the COMPASS-PWS Phase 3 trial... Read more >
Source: FPWR Blog | Published: November 11 2025 - 05:30 AM
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Endocrine Care for Children with Prader-Willi Syndrome: 2025 Conference Insights
Understanding the endocrine system is essential for managing Prader-Willi syndrome (PWS). From... Read more >
Source: FPWR Blog | Published: November 11 2025 - 09:00 AM
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Artist of the Year 2025 Winners: Celebrating Creativity and Hope
A special blog contribution from our 2025 FPWR Art Auction Participants. Read more >
Source: FPWR Blog | Published: November 11 2025 - 09:00 AM
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PWS Clinical Trials: 2025 Conference Recap and How Families Can Help
Clinical trials are the bridge between discovery and real-world treatments, and families in the... Read more >
Source: FPWR Blog | Published: October 10 2025 - 10:00 AM
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5 Treatments to Improve Quality of Life for People with PWS
FPWR is dedicated to advancing research and accelerating the development of safe and effective... Read more >
Source: FPWR Blog | Published: October 10 2025 - 05:15 AM
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Running for Hope: Meet Team FPWR 2025
They’re parents, siblings, friends, and advocates, and this November, they’ll take on 26.2 miles... Read more >
Source: FPWR Blog | Published: October 10 2025 - 09:00 AM
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Soleno Therapeutics Announces New Investment in PWS Research
Soleno Therapeutics is committing up to $5 million to accelerate progress toward a cure for... Read more >
Source: FPWR Blog | Published: October 10 2025 - 05:15 AM
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