FPWR Blog

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Soleno Therapeutics Releases a Statement to the PWS Community
A message from Soleno Therapeutics to our PWS Community: Read more >
Source: FPWR Blog | Published: August 8 2025 - 03:13 PM
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Honoring Leaders Who Inspire: 2025 FPWR Award Recipients
Each year, the Foundation for Prader-Willi Research (FPWR) recognizes outstanding individuals who... Read more >
Source: FPWR Blog | Published: August 8 2025 - 04:28 PM
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Welcoming Karla Blair and Nicci Peterson to the FPWR Team
We’re excited to introduce two new members of the FPWR team: Karla Blair and Nicci Peterson! As... Read more >
Source: FPWR Blog | Published: August 8 2025 - 09:00 AM
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PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: August 8 2025 - 08:30 AM
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Should I Talk with My Child About Their PWS Diagnosis?
How should I talk with my child about their PWS diagnosis? This is a question many parents ask as... Read more >
Source: FPWR Blog | Published: July 7 2025 - 09:00 AM
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Exploring the HERO Trial: Investigating ARD‑101 for Hyperphagia in PWS
We recently hosted a webinar featuring Dr. Tien Lee and Dr. Manasi Jaiman of Aardvark Therapeutics.... Read more >
Source: FPWR Blog | Published: July 7 2025 - 04:00 AM
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Now Enrolling: Participate in the TEMPO PWS Study Without Leaving Home
We’re excited to share a new opportunity to take part in the TEMPO clinical trial—from the comfort... Read more >
Source: FPWR Blog | Published: July 7 2025 - 05:15 AM
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Clinical Trial Results Show Promise for Managing Aggression and Hyperactivity in PWS
A newly published study on the use of guanfacine extended release (GXR) in individuals with... Read more >
Source: FPWR Blog | Published: July 7 2025 - 09:00 AM
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Acadia’s COMPASS PWS Study Fully Enrolled – Results Expected Early Q4 2025
We’re excited to share that Acadia Pharmaceuticals has officially completed enrollment for its... Read more >
Source: FPWR Blog | Published: July 7 2025 - 06:15 AM
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Post-Conference Glow: Highlights from United in Hope 2025
Still United, Still Inspired We're still riding the wave of connection, energy, and inspiration... Read more >
Source: FPWR Blog | Published: July 7 2025 - 04:15 AM
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Understanding Swallowing Difficulties and Aspiration in Infants with PWS
Did you know that swallowing issues are extremely common in babies with Prader-Willi syndrome... Read more >
Source: FPWR Blog | Published: July 7 2025 - 11:00 AM
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Top 10 Learnings from the Global PWS Registry
Thanks to nearly 2,000 participants completing a collective 61,795 surveys, the Global PWS Registry... Read more >
Source: FPWR Blog | Published: June 6 2025 - 09:00 AM
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HERO Study Now Enrolling People With PWS
A new clinical trial aims to provide relief from hyperphagia for people with Prader-Willi Syndrome.... Read more >
Source: FPWR Blog | Published: June 6 2025 - 06:30 AM
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Life Satisfaction, Global Health, and Mood in PWS: What a New Study Reveals
The FPWR research team recently published a new study that helps us better understand mood, general... Read more >
Source: FPWR Blog | Published: June 6 2025 - 08:59 AM
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