FPWR Blog

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Growing Up With a Sibling With PWS: Insights from the FPWR Conference
At the 2024 FPWR Conference, the session "Growing Up with a Sibling with PWS" offered a heartfelt... Read more >
Source: FPWR Blog | Published: December 12 2024 - 08:45 AM
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Reflecting on 2024: A Year of Progress & Promise for the PWS Community
As 2024 draws to a close, we at the Foundation for Prader-Willi Research (FPWR) are reflecting on a... Read more >
Source: FPWR Blog | Published: December 12 2024 - 09:30 AM
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Recap of the PWS-CLIC Meeting in Atlanta
The PWS-Clinical Investigation Collaborative (PWS-CLIC), a network of PWS clinical experts formally... Read more >
Source: FPWR Blog | Published: November 11 2024 - 09:00 AM
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De-Risking Treatment Development: Paving the Way for Therapeutic Successes
The Foundation for Prader-Willi Research (FPWR) employs a "de-risking" funding strategy to... Read more >
Source: FPWR Blog | Published: November 11 2024 - 07:34 AM
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FPWR Announces 2nd Round of 2024 Grants
We are pleased to announce the recipients of our second round of grants for 2024, totaling... Read more >
Source: FPWR Blog | Published: November 11 2024 - 06:30 AM
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Blood Clots in PWS: Risk Factors, Signs & Symptoms
Although rare overall, people with PWS have a higher risk for developing dangerous blood clots than... Read more >
Source: FPWR Blog | Published: November 11 2024 - 09:00 AM
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How Should I Talk with My Child About Their PWS Diagnosis?
How should I talk with my child about their PWS diagnosis? This is a question many parents ask as... Read more >
Source: FPWR Blog | Published: November 11 2024 - 09:00 AM
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2024 FPWR PWS/SYS Research Symposium Retrospective
In September, we were honored to host our annual meeting of researchers, physicians, and... Read more >
Source: FPWR Blog | Published: October 10 2024 - 09:30 AM
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United in Hope: 2025 Global Prader-Willi Syndrome Conference
We are excited to announce that the 2025 "United in Hope" conference will be held in collaboration... Read more >
Source: FPWR Blog | Published: October 10 2024 - 08:35 AM
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FDA Determines No Need For Advisory Committee Meeting At This Time
Soleno Therapeutics announced today that the U.S. Food and Drug Administration (FDA) Review... Read more >
Source: FPWR Blog | Published: October 10 2024 - 07:23 AM
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PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: October 10 2024 - 10:30 AM
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Harvesting Hope: Trot With Us To Make a Difference!
This fall, join us for a heartwarming and impactful challenge: Harvesting Hope—a fun,... Read more >
Source: FPWR Blog | Published: October 10 2024 - 08:45 AM
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Select Sessions from our 2024 Research Symposium and Family Conference Now Available
We're excited to announce that select sessions from our recent PWS Research Symposium and Family... Read more >
Source: FPWR Blog | Published: October 10 2024 - 08:15 AM
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New Study Highlights the Severe Impact of COVID-19 for Individuals with PWS
As the COVID-19 pandemic continues to evolve, researchers are working hard to understand how the... Read more >
Source: FPWR Blog | Published: September 9 2024 - 10:00 AM
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