FPWR Blog

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Share Your Rare: HopeFull Highlights for Rare Disease Day
As Rare Disease Day approaches on February 28, we want to spotlight the extraordinary qualities of... Read more >
Source: FPWR Blog | Published: February 2 2025 - 09:00 AM
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New Project Seeks to Identify Characteristics that Predict Challenging Behaviors in PWS
Individuals with PWS often exhibit rigidity, obsessive-compulsive tendencies, emotional outbursts,... Read more >
Source: FPWR Blog | Published: February 2 2025 - 11:21 AM
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New Resource for Parents: Helping Siblings Thrive in a PWS Family
The challenges of Prader-Willi syndrome extend beyond the individual diagnosed to the entire... Read more >
Source: FPWR Blog | Published: February 2 2025 - 09:00 AM
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Help Drive Progress: Become an Advocate Reviewer for PWS Research
A special contribution by guest blogger Will Greene. The future of PWS research depends on more... Read more >
Source: FPWR Blog | Published: January 1 2025 - 09:00 AM
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Planning for the Future: Estate and Insurance Insights for Families
Planning for the future can feel overwhelming, but it’s essential for families of individuals with... Read more >
Source: FPWR Blog | Published: January 1 2025 - 09:15 AM
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PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: January 1 2025 - 04:45 AM
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Navigating PWS: Stories, Strategies, and Insights from the FPWR Conference
The 2024 FPWR Conference opened with a powerful session featuring a panel of experts that left... Read more >
Source: FPWR Blog | Published: January 1 2025 - 08:30 AM
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Growing Up With a Sibling With PWS: Insights from the FPWR Conference
At the 2024 FPWR Conference, the session "Growing Up with a Sibling with PWS" offered a heartfelt... Read more >
Source: FPWR Blog | Published: December 12 2024 - 08:45 AM
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Inside FPWR’S Research Program: An Interview with the Research Team
Welcome to an inside look at some of the impactful research FPWR is supporting to improve the lives... Read more >
Source: FPWR Blog | Published: December 12 2024 - 09:30 AM
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Reflecting on 2024: A Year of Progress & Promise for the PWS Community
As 2024 draws to a close, we at the Foundation for Prader-Willi Research (FPWR) are reflecting on a... Read more >
Source: FPWR Blog | Published: December 12 2024 - 09:30 AM
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Recap of the PWS-CLIC Meeting in Atlanta
The PWS-Clinical Investigation Collaborative (PWS-CLIC), a network of PWS clinical experts formally... Read more >
Source: FPWR Blog | Published: November 11 2024 - 09:00 AM
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De-Risking Treatment Development: Paving the Way for Therapeutic Successes
The Foundation for Prader-Willi Research (FPWR) employs a "de-risking" funding strategy to... Read more >
Source: FPWR Blog | Published: November 11 2024 - 07:34 AM
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FPWR Announces 2nd Round of 2024 Grants
We are pleased to announce the recipients of our second round of grants for 2024, totaling... Read more >
Source: FPWR Blog | Published: November 11 2024 - 06:30 AM
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Blood Clots in PWS: Risk Factors, Signs & Symptoms
Although rare overall, people with PWS have a higher risk for developing dangerous blood clots than... Read more >
Source: FPWR Blog | Published: November 11 2024 - 09:00 AM
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