FPWR Blog

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Behavior and Flexibility in PWS: Expert Advice for Families
Behavioral challenges are among the most difficult aspects of Prader-Willi syndrome (PWS). These... Read more >
Source: FPWR Blog | Published: November 11 2025 - 05:30 AM
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Caregiver Perspectives: Insights on the COMPASS-PWS Trial
Background In response to Acadia Pharmaceuticals’ announcement that the COMPASS-PWS Phase 3 trial... Read more >
Source: FPWR Blog | Published: November 11 2025 - 05:30 AM
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Endocrine Care for Children with Prader-Willi Syndrome: 2025 Conference Insights
Understanding the endocrine system is essential for managing Prader-Willi syndrome (PWS). From... Read more >
Source: FPWR Blog | Published: November 11 2025 - 09:00 AM
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PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: November 11 2025 - 07:33 AM
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Artist of the Year 2025 Winners: Celebrating Creativity and Hope
A special blog contribution from our 2025 FPWR Art Auction Participants. Read more >
Source: FPWR Blog | Published: November 11 2025 - 09:00 AM
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PWS Clinical Trials: 2025 Conference Recap and How Families Can Help
Clinical trials are the bridge between discovery and real-world treatments, and families in the... Read more >
Source: FPWR Blog | Published: October 10 2025 - 10:00 AM
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5 Treatments to Improve Quality of Life for People with PWS
FPWR is dedicated to advancing research and accelerating the development of safe and effective... Read more >
Source: FPWR Blog | Published: October 10 2025 - 05:15 AM
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Running for Hope: Meet Team FPWR 2025
They’re parents, siblings, friends, and advocates, and this November, they’ll take on 26.2 miles... Read more >
Source: FPWR Blog | Published: October 10 2025 - 09:00 AM
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Soleno Therapeutics Announces New Investment in PWS Research
Soleno Therapeutics is committing up to $5 million to accelerate progress toward a cure for... Read more >
Source: FPWR Blog | Published: October 10 2025 - 05:15 AM
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Two Exciting Research Opportunities for Families of Children with PWS
Families of children with Prader-Willi syndrome (PWS), your participation has the power to make a... Read more >
Source: FPWR Blog | Published: October 10 2025 - 10:55 AM
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Harvesting Hope 2025: Walk, Run, or Shake Your Tailfeather
Ready to put purpose in your steps? The Harvesting Hope Distance Challenge is back starting October... Read more >
Source: FPWR Blog | Published: October 10 2025 - 09:00 AM
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Phase 3 COMPASS PWS Trial of Intranasal Carbetocin Does Not Meet Primary Endpoint
We are saddened to share disappointing news from Acadia Pharmaceuticals. The Phase 3 COMPASS... Read more >
Source: FPWR Blog | Published: September 9 2025 - 07:41 AM
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Adults With PWS: Aging and Health - What Families Should Know
Adults with Prader-Willi syndrome (PWS) can experience earlier-onset changes in health and daily... Read more >
Source: FPWR Blog | Published: September 9 2025 - 07:30 AM
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How 10 FPWR Families Turned Hope Into Action and How You Can Too
Thinking about fundraising for PWS research but not sure where to start? You’re in good company!... Read more >
Source: FPWR Blog | Published: September 9 2025 - 08:30 AM
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