FPWR Blog

Kathryn McGhee has been an active member of our PWS community for 22 years, participating in... Read more >
Source: FPWR Blog | Published: July 7 2024 - 09:00 AM
Improving diversity, equity, inclusion, and accessibility (DEIA) in PWS clinical research is a... Read more >
Source: FPWR Blog | Published: July 7 2024 - 08:45 AM
We are excited to share the news that Soleno Therapeutics has submitted its New Drug Application... Read more >
Source: FPWR Blog | Published: June 6 2024 - 06:53 AM
Since first tapping into our community 12 years ago, Katie and Adam Larson have been ready to do... Read more >
Source: FPWR Blog | Published: June 6 2024 - 08:30 AM
In a significant step towards fostering equity and inclusion within our Prader-Willi syndrome (PWS)... Read more >
Source: FPWR Blog | Published: June 6 2024 - 08:52 AM
If your loved one with PWS struggles with daytime sleepiness, you may be interested in learning... Read more >
Source: FPWR Blog | Published: June 6 2024 - 03:24 PM
Have you ever wanted to know more about the drug development process and how patients and patient... Read more >
Source: FPWR Blog | Published: June 6 2024 - 09:30 AM
Prader-Willi syndrome (PWS) is a complex genetic disorder with a range of challenging symptoms,... Read more >
Source: FPWR Blog | Published: June 6 2024 - 11:07 AM
In this 1 hour and 52-minute video, Dr. Anastasia Dimitropoulos of the PRETEND Program, Staci... Read more >
Source: FPWR Blog | Published: June 6 2024 - 09:30 AM
The FPWR Genome Study, full title “Whole Genome and RNA Sequencing Analysis in Prader-Willi... Read more >
Source: FPWR Blog | Published: May 5 2024 - 09:30 AM
Exciting developments are sweeping through the PWS community, spotlighting two potential... Read more >
Source: FPWR Blog | Published: May 5 2024 - 10:00 AM
We are pleased to announce the recipients of our first round of grants for 2024, totaling more than... Read more >
Source: FPWR Blog | Published: May 5 2024 - 08:15 AM
PWS impacts many aspects of our children’s lives. The hallmark struggle for those affected by PWS... Read more >
Source: FPWR Blog | Published: May 5 2024 - 10:00 AM
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: May 5 2024 - 09:05 AM