FPWR Blog

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DCCR (VYKAT XR) Approved for Treating Hyperphagia in Prader-Willi Syndrome
We are thrilled to share that the FDA has approved the first treatment for hyperphagia (excessive... Read more >
Source: FPWR Blog | Published: March 3 2025 - 02:29 PM
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Announcing the Launch of the Global Schaaf-Yang Syndrome Registry
FPWR is pleased to announce the launch of the Global Schaaf-Yang Syndrome Registry, an online... Read more >
Source: FPWR Blog | Published: March 3 2025 - 12:29 PM
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Your Impact 2024
Everything we do is made possible by you—our dedicated supporters and partners on this journey.... Read more >
Source: FPWR Blog | Published: March 3 2025 - 06:35 AM
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School Interrupted: Three Families Share their Experiences with PWS and Excessive Daytime Sleepiness at School
Harmony Biosciences recently interviewed three families about their experiences with Prader-Willi... Read more >
Source: FPWR Blog | Published: March 3 2025 - 06:30 AM
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The Power of Representation in the PWS Community
When Karine’s son, Olivier, was diagnosed with Prader-Willi Syndrome (PWS), she searched for... Read more >
Source: FPWR Blog | Published: March 3 2025 - 06:42 AM
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FPWR Announces Executive Committee Appointments and Welcomes New Board Members for 2025
The Foundation for Prader-Willi Research (FPWR) is excited to announce key updates to its board... Read more >
Source: FPWR Blog | Published: February 2 2025 - 06:15 AM
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CRISPR Breakthrough Brings New Hope for Treating PWS
Exciting new research funded by FPWR has brought us one step closer to an effective gene therapy... Read more >
Source: FPWR Blog | Published: February 2 2025 - 06:00 AM
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Urgent Action Needed: NIH Cuts Threaten Critical Research
On February 7th, the National Institutes of Health (NIH) announced a drastic, immediate reduction... Read more >
Source: FPWR Blog | Published: February 2 2025 - 09:47 AM
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Share Your Rare: HopeFull Highlights for Rare Disease Day
As Rare Disease Day approaches on February 28, we want to spotlight the extraordinary qualities of... Read more >
Source: FPWR Blog | Published: February 2 2025 - 09:00 AM
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Aardvark IPO Brings $94M to PWS Drug Development
Aardvark Therapeutics achieved a major milestone last week by launching its initial public offering... Read more >
Source: FPWR Blog | Published: February 2 2025 - 07:43 AM
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New Project Seeks to Identify Characteristics that Predict Challenging Behaviors in PWS
Individuals with PWS often exhibit rigidity, obsessive-compulsive tendencies, emotional outbursts,... Read more >
Source: FPWR Blog | Published: February 2 2025 - 11:21 AM
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New Resource for Parents: Helping Siblings Thrive in a PWS Family
The challenges of Prader-Willi syndrome extend beyond the individual diagnosed to the entire... Read more >
Source: FPWR Blog | Published: February 2 2025 - 09:00 AM
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Help Drive Progress: Become an Advocate Reviewer for PWS Research
A special contribution by guest blogger Will Greene. The future of PWS research depends on more... Read more >
Source: FPWR Blog | Published: January 1 2025 - 09:00 AM
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Planning for the Future: Estate and Insurance Insights for Families
Planning for the future can feel overwhelming, but it’s essential for families of individuals with... Read more >
Source: FPWR Blog | Published: January 1 2025 - 09:15 AM
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