FPWR Blog

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The FPWR Therapeutic Accelerator Program: Bridging Research and Development
While much of FPWR’s work starts with discovery research, our mission extends across the full drug... Read more >
Source: FPWR Blog | Published: January 1 2026 - 06:45 AM
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Modafinil and Daytime Sleepiness in Prader-Willi Syndrome
Excessive daytime sleepiness (EDS) is one of those symptoms of Prader-Willi syndrome (PWS) that... Read more >
Source: FPWR Blog | Published: January 1 2026 - 08:59 AM
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Pivotal Study Results of  VYKAT™ XR Published
Soleno Therapeutics has published results from its pivotal Phase 3 clinical study of VYKAT™ XR... Read more >
Source: FPWR Blog | Published: January 1 2026 - 05:45 AM
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Your 2025 Impact: FPWR Fundraising Wrapped
Every breakthrough, every milestone, and every step forward in 2025 had one thing in common: our... Read more >
Source: FPWR Blog | Published: January 1 2026 - 08:00 AM
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Global PWS Registry 2.0 Launches with New VYKAT Module
The Global PWS Registry is powered by the dedication of patients and families who share their PWS... Read more >
Source: FPWR Blog | Published: January 1 2026 - 04:15 AM
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Are GLP-1s Safe and Effective for People with PWS?
You have probably heard of GLP-1 receptor agonists (GLP-1s). You may even know someone who has... Read more >
Source: FPWR Blog | Published: January 1 2026 - 09:00 AM
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Dream, Believe, Achieve
I’m a mom, so you know my memory is full of as many holes as Swiss cheese. I can’t remember much of... Read more >
Source: FPWR Blog | Published: January 1 2026 - 08:00 AM
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Pitolisant for Daytime Sleepiness in PWS: New Research Findings
Families and caregivers in the Prader-Willi syndrome (PWS) community whose loved one experiences... Read more >
Source: FPWR Blog | Published: December 12 2025 - 09:00 AM
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Positive Preliminary Results with Setmelanotide and Plans for Evaluation of RM-718 for PWS
Rhythm Pharmaceuticals has shared positive preliminary results from its exploratory Phase 2 trial... Read more >
Source: FPWR Blog | Published: December 12 2025 - 04:00 AM
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PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: December 12 2025 - 05:53 PM
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One Small Step 2025: A Record-Breaking Year of Impact
One Small Step set out with a bold goal in 2025: raise $250,000 for Prader-Willi syndrome research.... Read more >
Source: FPWR Blog | Published: December 12 2025 - 02:30 PM
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Self-Care for Caregivers: Your Well-Being Matters
Caring for a child or adult with Prader-Willi syndrome (PWS) often means juggling medical... Read more >
Source: FPWR Blog | Published: December 12 2025 - 07:00 AM
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Reflecting on 2025: A Year of Breakthroughs, Milestones, and Momentum
As we wrap up 2025, we’re celebrating a year shaped by real progress… scientific breakthroughs, new... Read more >
Source: FPWR Blog | Published: December 12 2025 - 02:29 AM
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Save the Date for FPWR’s 2026 PWS Family Conference & Workshops
Mark your calendars and join us October 9–10, 2026, as parents, caregivers, and medical... Read more >
Source: FPWR Blog | Published: November 11 2025 - 11:00 AM
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