FPWR Blog

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United in Hope:  2025 Global Prader-Willi Syndrome Conference
We are excited to announce that the 2025 "United in Hope" conference will be held in collaboration... Read more >
Source: FPWR Blog | Published: October 10 2024 - 08:35 AM
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PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: October 10 2024 - 10:30 AM
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Harvesting Hope: Trot With Us To Make a Difference!
This fall, join us for a heartwarming and impactful challenge: Harvesting Hope—a fun,... Read more >
Source: FPWR Blog | Published: October 10 2024 - 08:45 AM
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Select Sessions from our 2024 Research Symposium and Family Conference Now Available
We're excited to announce that select sessions from our recent PWS Research Symposium and Family... Read more >
Source: FPWR Blog | Published: October 10 2024 - 08:15 AM
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New Study Highlights the Severe Impact of COVID-19 for Individuals with PWS
As the COVID-19 pandemic continues to evolve, researchers are working hard to understand how the... Read more >
Source: FPWR Blog | Published: September 9 2024 - 10:00 AM
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Meet Team FPWR: A Dynamic Force Running the NYC Marathon for Research
Meet Team FPWR, a powerhouse group of eleven incredible individuals lacing up their sneakers to... Read more >
Source: FPWR Blog | Published: September 9 2024 - 12:30 PM
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Webinar Provides Details on COMPASS PWS Clinical Trial
In a recent webinar, Acadia Pharmaceuticals shared details of their COMPASS-PWS Clinical trial... Read more >
Source: FPWR Blog | Published: September 9 2024 - 05:35 AM
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FDA Advisory Committee to Review DCCR as Treatment for Hyperphagia in PWS
The FDA has announced its plan to conduct an Advisory Committee Meeting as part of its review of... Read more >
Source: FPWR Blog | Published: September 9 2024 - 05:15 AM
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FDA Accepts DCCR Filing and Grants Priority Review
Soleno Therapeutics announced today that the U.S. Food and Drug Administration (FDA) has accepted... Read more >
Source: FPWR Blog | Published: August 8 2024 - 08:34 AM
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Exploring Type I and II Deletions in Prader-Willi: Cell-Level Insights
70% of cases of Prader-Willi syndrome are associated with a “deletion” of 5,000–6,000 missing base... Read more >
Source: FPWR Blog | Published: August 8 2024 - 09:15 AM
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The Matesevac Family Welcomes You to Atlanta this September!
A special contribution by guest blogger Lisa Matesevac. Welcome to the ATL! We are thrilled that... Read more >
Source: FPWR Blog | Published: August 8 2024 - 09:15 AM
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PWS Advocacy Coalition Submits Petition to FDA for Priority Review of DCCR NDA
On Friday, August 2nd, the PWS Advocacy Coalition submitted a petition to the U.S. Food and Drug... Read more >
Source: FPWR Blog | Published: August 8 2024 - 10:43 AM
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FDA Grants Rare Pediatric Disease Designation to CSTI-500
The FDA has granted Rare Pediatric Disease Designation (RPDD) to ConSynance Therapeutics' new... Read more >
Source: FPWR Blog | Published: July 7 2024 - 08:45 AM
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FPWR 2024 Family Conference: Deep Dive Workshops
You won’t want to miss these speakers at the 2024 FPWR Family Conference this September in Atlanta,... Read more >
Source: FPWR Blog | Published: July 7 2024 - 08:45 AM
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