FPWR Blog

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De-Risking Treatment Development: Paving the Way for Therapeutic Successes
The Foundation for Prader-Willi Research (FPWR) employs a "de-risking" funding strategy to... Read more >
Source: FPWR Blog | Published: November 11 2024 - 07:34 AM
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Blood Clots in PWS: Risk Factors, Signs & Symptoms
Although rare overall, people with PWS have a higher risk for developing dangerous blood clots than... Read more >
Source: FPWR Blog | Published: November 11 2024 - 09:00 AM
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How Should I Talk with My Child About Their PWS Diagnosis?
How should I talk with my child about their PWS diagnosis? This is a question many parents ask as... Read more >
Source: FPWR Blog | Published: November 11 2024 - 09:00 AM
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2024 FPWR PWS/SYS Research Symposium Retrospective
In September, we were honored to host our annual meeting of researchers, physicians, and... Read more >
Source: FPWR Blog | Published: October 10 2024 - 09:30 AM
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United in Hope: 2025 Global Prader-Willi Syndrome Conference
We are excited to announce that the 2025 "United in Hope" conference will be held in collaboration... Read more >
Source: FPWR Blog | Published: October 10 2024 - 08:35 AM
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FDA Determines No Need For Advisory Committee Meeting At This Time
Soleno Therapeutics announced today that the U.S. Food and Drug Administration (FDA) Review... Read more >
Source: FPWR Blog | Published: October 10 2024 - 07:23 AM
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PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: October 10 2024 - 10:30 AM
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Harvesting Hope: Trot With Us To Make a Difference!
This fall, join us for a heartwarming and impactful challenge: Harvesting Hope—a fun,... Read more >
Source: FPWR Blog | Published: October 10 2024 - 08:45 AM
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Select Sessions from our 2024 Research Symposium and Family Conference Now Available
We're excited to announce that select sessions from our recent PWS Research Symposium and Family... Read more >
Source: FPWR Blog | Published: October 10 2024 - 08:15 AM
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New Study Highlights the Severe Impact of COVID-19 for Individuals with PWS
As the COVID-19 pandemic continues to evolve, researchers are working hard to understand how the... Read more >
Source: FPWR Blog | Published: September 9 2024 - 10:00 AM
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Meet Team FPWR: A Dynamic Force Running the NYC Marathon for Research
Meet Team FPWR, a powerhouse group of eleven incredible individuals lacing up their sneakers to... Read more >
Source: FPWR Blog | Published: September 9 2024 - 12:30 PM
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Webinar Provides Details on COMPASS PWS Clinical Trial
In a recent webinar, Acadia Pharmaceuticals shared details of their COMPASS-PWS Clinical trial... Read more >
Source: FPWR Blog | Published: September 9 2024 - 05:35 AM
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FDA Advisory Committee to Review DCCR as Treatment for Hyperphagia in PWS
The FDA has announced its plan to conduct an Advisory Committee Meeting as part of its review of... Read more >
Source: FPWR Blog | Published: September 9 2024 - 05:15 AM
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FDA Accepts DCCR Filing and Grants Priority Review
Soleno Therapeutics announced today that the U.S. Food and Drug Administration (FDA) has accepted... Read more >
Source: FPWR Blog | Published: August 8 2024 - 08:34 AM
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