FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits, while others can be completed remotely. Some trials are testing new drugs, while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog
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Published: January 1 2025 - 04:45 AM
At the 2024 FPWR Conference, the session "Growing Up with a Sibling with PWS" offered a heartfelt and detailed look into the experiences of siblings of children with Prader-Willi Syndrome (PWS). Led by Dr. Lauren Schwartz Roth, a researcher and mother, the session shared insights from her year-long...
Source: FPWR Blog
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Published: December 12 2024 - 08:45 AM
Welcome to an inside look at some of the impactful research FPWR is supporting to improve the lives of individuals with Prader-Willi syndrome (PWS). In this interview, four of our dedicated research team members—Theresa Strong, Marc Ridilla, Lisa Burnett, and Caroline Vrana-Diaz—share updates on a...
Source: FPWR Blog
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Published: December 12 2024 - 09:30 AM
As 2024 draws to a close, we at the Foundation for Prader-Willi Research (FPWR) are reflecting on a year filled with progress, promise, and hope. This year’s achievements wouldn’t have been possible without the incredible dedication of our community—researchers, families, donors, and advocates—who...
Source: FPWR Blog
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Published: December 12 2024 - 09:30 AM
The PWS-Clinical Investigation Collaborative (PWS-CLIC), a network of PWS clinical experts formally established in 2021 and supported by FPWR, held their annual meeting in Atlanta, Georgia, in conjunction with the FPWR Research Symposium and Family Conference, on September 27th, 2024. We had 15...
Source: FPWR Blog
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Published: November 11 2024 - 09:00 AM
