The Foundation for Prader-Willi Research (FPWR) employs a "de-risking" funding strategy to accelerate the development of new treatments for Prader-Willi syndrome (PWS). We are here to take the risks, fund new ideas, and help build the resources that will advance treatments to the finish line.
Source: FPWR Blog
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Published: November 11 2024 - 07:34 AM
We are pleased to announce the recipients of our second round of grants for 2024, totaling $1,681,781 in awards, as part of the Foundation for Prader-Willi Research’s (FPWR) ongoing commitment to advancing research in Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome (SYS). These grants will...
Source: FPWR Blog
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Published: November 11 2024 - 06:30 AM
Although rare overall, people with PWS have a higher risk for developing dangerous blood clots than the general population. A blood clot is a mass of blood that has changed from its liquid state into a semi-solid or gel-like form.
Source: FPWR Blog
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Published: November 11 2024 - 09:00 AM
How should I talk with my child about their PWS diagnosis? This is a question many parents ask as their child grows and differences between them and their typical peers may become more apparent. Will discussing the PWS diagnosis empower their child to advocate for themselves effectively, or could...
Source: FPWR Blog
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Published: November 11 2024 - 09:00 AM
In September, we were honored to host our annual meeting of researchers, physicians, and pharmaceutical companies interested in Prader-Willi or Schaaf-Yang syndromes. This event is consistently invigorating as the leaders in PWS/SYS research not only share their latest results and plans with their...
Source: FPWR Blog
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Published: October 10 2024 - 09:30 AM
