FPWR Blog

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Celebrating the Strengths of People with Prader-Willi Syndrome
When people think about Prader-Willi syndrome (PWS), conversations often focus on the challenges.... Read more >
Source: FPWR Blog | Published: May 5 2026 - 04:45 AM
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Parents Seek Answers, Leaders Step Forward
In January 2008, The Dallas Morning News published an article titled “Parents Seek Answers.” At the... Read more >
Source: FPWR Blog | Published: May 5 2026 - 05:45 AM
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HopeFULL Highlights: Unlocking What’s Possible
May is PWS Awareness Month. It’s a time to better understand Prader-Willi syndrome and to see... Read more >
Source: FPWR Blog | Published: May 5 2026 - 06:00 AM
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Study Sheds Light on Temper Outbursts in Prader-Willi Syndrome
Families raising a child with Prader-Willi syndrome know how difficult temper outbursts can be. In... Read more >
Source: FPWR Blog | Published: April 4 2026 - 05:45 AM
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FPWR Invests in ConSynance Therapeutics to Advance New Treatment for Prader-Willi Syndrome
The Foundation for Prader-Willi Research (FPWR) today announced a venture philanthropy investment... Read more >
Source: FPWR Blog | Published: April 4 2026 - 06:00 AM
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Skin Picking in Prader-Willi Syndrome: Why It Happens and What Can Help
Skin picking is a common and challenging behavior seen in people with Prader-Willi syndrome (PWS),... Read more >
Source: FPWR Blog | Published: April 4 2026 - 05:00 AM
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From the NICU to Hosting a Walk for Prader-Willi Syndrome Research
For lack of a better phrase to emphasize the heaviness and intensity of the beginning: those days... Read more >
Source: FPWR Blog | Published: April 4 2026 - 04:59 AM
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A Grandmother’s Love: Showing Up for Miles and the PWS Community
When our family learned that Miles had Prader-Willi syndrome, everything changed. I had never heard... Read more >
Source: FPWR Blog | Published: March 3 2026 - 08:30 AM
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When the Well-Being of Caregivers is Supported, Everyone Benefits
Parents of children with Prader-Willi syndrome don’t need to be told that caregiving is hard — you... Read more >
Source: FPWR Blog | Published: March 3 2026 - 05:45 AM
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Growing Into Independence: Emma’s Journey Continues
It’s been quite a journey since I first wrote about Emma for FPWR. In the years since, she has... Read more >
Source: FPWR Blog | Published: March 3 2026 - 07:58 AM
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Top 10 Reasons to Attend the 2026 FPWR Prader-Willi Syndrome Conference in Philadelphia
Join us October 9–10 in Philadelphia for the annual FPWR Family Conference, a unique gathering... Read more >
Source: FPWR Blog | Published: March 3 2026 - 05:30 AM
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PWS Registry Data: Dermatology
When it comes to dermatological or skin issues in PWS, the first things that may come to mind are... Read more >
Source: FPWR Blog | Published: March 3 2026 - 09:00 AM
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New Study Opportunity for Prader-Willi Syndrome: Now Enrolling RM-718
A new clinical study is now enrolling individuals with Prader-Willi syndrome (PWS), offering... Read more >
Source: FPWR Blog | Published: March 3 2026 - 11:57 AM
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The Impact of Sleep on Behavior and Mental Health in PWS
Sleep challenges affect more than 70% of individuals with Prader-Willi syndrome (PWS). Excessive... Read more >
Source: FPWR Blog | Published: March 3 2026 - 08:00 PM
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