FPWR Blog

◀
What’s Sending People with PWS to the Emergency Department?
When you’re caring for someone with Prader-Willi syndrome (PWS), you become an expert at navigating... Read more >
Source: FPWR Blog | Published: May 5 2026 - 06:30 AM
▶
◀
FPWR Awards Seven New Research Grants in First Funding Round of 2026
We are pleased to announce the recipients of FPWR's first round of grants in 2026, totaling more... Read more >
Source: FPWR Blog | Published: May 5 2026 - 06:15 AM
▶
◀
Aardvark Therapeutics to Unblind Data Following FDA Clinical Hold
Aardvark Therapeutics has announced that the U.S. Food and Drug Administration (FDA) has placed a... Read more >
Source: FPWR Blog | Published: May 5 2026 - 01:21 PM
▶
◀
Celebrating the Strengths of People with Prader-Willi Syndrome
When people think about Prader-Willi syndrome (PWS), conversations often focus on the challenges.... Read more >
Source: FPWR Blog | Published: May 5 2026 - 04:45 AM
▶
◀
Expert Guidance Published for DCCR (VYKAT™ XR) Use in Prader-Willi Syndrome
An expert review, written by Drs. Miller, Shoemaker, Salehi, and Corletto, offers practical... Read more >
Source: FPWR Blog | Published: May 5 2026 - 01:42 PM
▶
◀
Parents Seek Answers, Leaders Step Forward
In January 2008, The Dallas Morning News published an article titled “Parents Seek Answers.” At the... Read more >
Source: FPWR Blog | Published: May 5 2026 - 05:45 AM
▶
◀
HopeFULL Highlights: Unlocking What’s Possible
May is PWS Awareness Month. It’s a time to better understand Prader-Willi syndrome and to see... Read more >
Source: FPWR Blog | Published: May 5 2026 - 06:00 AM
▶
◀
PWS Clinical Trials Alert
FPWR maintains the latest clinical trial information so that you can stay abreast of trial... Read more >
Source: FPWR Blog | Published: May 5 2026 - 12:30 AM
▶
◀
Study Sheds Light on Temper Outbursts in Prader-Willi Syndrome
Families raising a child with Prader-Willi syndrome know how difficult temper outbursts can be. In... Read more >
Source: FPWR Blog | Published: April 4 2026 - 05:45 AM
▶
◀
FPWR Invests in ConSynance Therapeutics to Advance New Treatment for Prader-Willi Syndrome
The Foundation for Prader-Willi Research (FPWR) today announced a venture philanthropy investment... Read more >
Source: FPWR Blog | Published: April 4 2026 - 06:00 AM
▶
◀
Skin Picking in Prader-Willi Syndrome: Why It Happens and What Can Help
Skin picking is a common and challenging behavior seen in people with Prader-Willi syndrome (PWS),... Read more >
Source: FPWR Blog | Published: April 4 2026 - 05:00 AM
▶
◀
From the NICU to Hosting a Walk for Prader-Willi Syndrome Research
For lack of a better phrase to emphasize the heaviness and intensity of the beginning: those days... Read more >
Source: FPWR Blog | Published: April 4 2026 - 04:59 AM
▶
◀
A Grandmother’s Love: Showing Up for Miles and the PWS Community
When our family learned that Miles had Prader-Willi syndrome, everything changed. I had never heard... Read more >
Source: FPWR Blog | Published: March 3 2026 - 08:30 AM
▶
◀
When the Well-Being of Caregivers is Supported, Everyone Benefits
Parents of children with Prader-Willi syndrome don’t need to be told that caregiving is hard — you... Read more >
Source: FPWR Blog | Published: March 3 2026 - 05:45 AM
▶