FPWR Blog

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VYKAT XR: Clinician Recommendations for ‘Real World’ Use and Monitoring Side Effects
Since VYKAT XR became available in March 2025, our community has begun to gain valuable real-world... Read more >
Source: FPWR Blog | Published: August 8 2026 - 06:45 AM
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When the Impossible Becomes Everyday: A PWS Story
By Guest Blogger Tammy Galloway I have started this story many times, and each time I find myself... Read more >
Source: FPWR Blog | Published: July 7 2026 - 10:03 AM
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FPWR 2026 Family Conference: Deep Dive Workshops
At this year's FPWR Family Conference, you'll find more than traditional presentations. Explore... Read more >
Source: FPWR Blog | Published: July 7 2026 - 10:02 AM
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From “What If?” to “What’s Next?”
Bath time has just finished, and the sun is setting. Our daughter’s nightly routine is about to... Read more >
Source: FPWR Blog | Published: July 7 2026 - 10:03 AM
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When Will My Child Reach Milestones? A Look at Development in PWS
Families affected by Prader-Willi syndrome (PWS) often have questions about their child’s... Read more >
Source: FPWR Blog | Published: July 7 2026 - 10:55 AM
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How Pretend Play Helps Children with PWS Build Social Skills
Many parents wonder how to help their child build friendships, understand emotions, and navigate... Read more >
Source: FPWR Blog | Published: July 7 2026 - 11:01 AM
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How Two Moms Turned Fear Into Action Through One Small Step
When Amy Reinmuller first considered hosting One Small Step Baton Rouge, the idea stayed in the... Read more >
Source: FPWR Blog | Published: June 6 2026 - 05:45 AM
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What New Parents Can Expect at the FPWR Family Conference
The early years after a PWS diagnosis come with a lot of questions. The New Parent Track is... Read more >
Source: FPWR Blog | Published: June 6 2026 - 09:46 AM
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Six-Month Setmelanotide Data Show Benefits in PWS
Rhythm Pharmaceuticals recently shared encouraging six-month results from its ongoing Phase 2... Read more >
Source: FPWR Blog | Published: June 6 2026 - 09:44 AM
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Addison's Army Started with One Small Step
The night before One Small Step Maryland, Jen Lieberman was worried nobody would come. By the next... Read more >
Source: FPWR Blog | Published: June 6 2026 - 08:45 AM
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Team FPWR Takes on the 2026 TCS New York City Marathon
This year’s Team FPWR roster is something special. Our 2026 runners come from all over the country... Read more >
Source: FPWR Blog | Published: June 6 2026 - 05:45 AM
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Spinal Fusion Surgery in Prader-Willi Syndrome: Preparing for Surgery and Recovery
This article includes personal experiences shared by Lisa Matesevac and clinical guidance from Dr.... Read more >
Source: FPWR Blog | Published: June 6 2026 - 05:30 AM
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Understanding Scoliosis in Prader-Willi Syndrome: From Early Curves to Surgical Decisions
Scoliosis is a common orthopedic complication in Prader-Willi syndrome (PWS), affecting the... Read more >
Source: FPWR Blog | Published: June 6 2026 - 05:45 AM
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What’s Sending People with PWS to the Emergency Department?
When you’re caring for someone with Prader-Willi syndrome (PWS), you become an expert at navigating... Read more >
Source: FPWR Blog | Published: May 5 2026 - 06:30 AM
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