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    Join Us

    Research Drives Breakthroughs

    The Foundation for Prader-Willi Research funds the science that improves care, advances new treatments, and brings us closer to a future with more possibilities for every person with Prader-Willi syndrome.

    Support Our Research

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    Learn About PWS

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    Our Impact

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    $ 30 M

    Total Research
Funding
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    309

    Research Projects
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    5,000 +

    Registry 
Participants
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    4

    Active Clinical Trials

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    Donate
    Fundraise
    Participate in PWS Research

    Move PWS research forward.

    You can help us find new treatments and a cure for Prader-Willi Syndrome
    Donate Now

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    Dinah White

    Research Happens When You Take Action

    Fundraising is an empowering way to raise awareness and accelerate cutting-edge research.

    Take Action

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    FUNDRAISE

    Be Part of PWS Research

    Learn what researchers are studying and how you can contribute to progress.
    Learn More

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    Participate

    Recently Diagnosed?

    Receiving a PWS diagnosis can feel overwhelming. Find clear, trusted information about what PWS is, what to expect, and the first steps you can take for your family.

    Start Here

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    Get Involved

    “PWS research means the world to us! Every day we watch our little brother Ethan and see the amazing things he is capable of. We’ll keep supporting him and all of his friends with PWS until there are better treatments.”

    — The Davidson Brothers
    Get Involved With FPWR

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    Super Davidson Bros-2
    Participate in a PWS Clinical Trial

    Explore PWS Clinical Trials

    Clinical trial participants make new treatment options possible. Explore current studies, understand what participation involves, and find opportunities that may fit your family.

    Learn More

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    Upcoming Events

    2026 Annual Research Symposium & Family Conference

    October 7 - 10, 2026
    Join us in Philadelphia to hear what’s new in PWS research, take part in hands-on workshops, and connect with clinicians, researchers, and families who get it.
    Learn More

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    Live Life Full, Philadelphia

    October 10, 2026

    Lace up your favorite sneakers and join us at Ballers Philadelphia for cocktails, kicks, and a seriously fun night for the best cause!

    Join Us

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    Live Life Full, Philadelphia

    Find an Event Near You

    Across the Country
    From One Small Step walks to local fundraisers, FPWR events bring people together to move PWS research forward.
    View All Events

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    Find an Event Near You

    Our Partners

     

    AutismBrain
    FPWR UK
    Combined
    FPWR Canada
    IPWSO
    PWSA-USA
    NORD
    Colors of Hope BIPOC

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