May Is PWS Awareness Month

In 2019, the House of Representatives officially recognized May as Prader-Willi Syndrome Awareness Month, and since then, our community has used this time to share stories, raise awareness, and push for the research breakthroughs our loved ones deserve. Awareness leads to action, and action leads to change.

Here are 3 Things You Can Do This Month:

1. Raise Awareness

Small actions spark big change. Educate others about PWS and the urgent need for treatments by:

• Share daily PWS facts – Follow us on social or sign up for daily fact emails to help raise awareness. Get the Facts>>
  
• Update your profile picture – Show your support by adding a PWS Awareness Month frame to your profile picture. Profile Picture>>
  
• Use a PWS Zoom background – Make your next virtual meeting an opportunity to educate others. Zoom Background >>
  
• Print and post a flyer – Display a PWS awareness flyer in your workplace, school, or community center to educate others. Flyer >>

2. Complete Your Registry Surveys

If you're a parent or caregiver of a person with PWS, one of the most powerful ways you can drive progress is by participating in the Global PWS Registry. The FDA relies on well-documented data to approve new treatments, and the Registry provides the essential natural history data researchers need. Your participation helps shape the future of PWS care, ensuring that the voices of those living with PWS are heard. Take 10 minutes to complete or update your surveys today! Visit the Registry >>

3. Fundraise or Donate to Support Our Research Efforts

Everything we do, we can do because of YOU.  Do you want treatments and a cure for PWS? If so, we invite you to join us and play a vital role by fundraising for PWS research. Fundraise >> or Donate >>  to support our efforts.

Need help getting started? Fundraising can be anything you want it to be. Here are a few ways you can get started in minutes!

📱From your device – Launch a page in minutes, then share it! Become a Fundraiser  >>

🧡 Host an Orange Day – Collect donations at work or school for the chance to wear orange (or jeans) for the day! Become a Fundraiser  >>

🍽 Fast for the 15th – Skip a meal on May 15th and donate what you would have spent to FPWR. Download the Graphic >>

🏆 Move for Research – Run, walk, or cycle as part of our Move for Research campaign! Learn More >>

How Do I Start Fundraising?

No experience necessary! One of the easiest ways to launch a customized fundraising page in minutes is by clicking here >> Become a Fundraiser, or, simply set up a Facebook fundraiser! Check out our fundraising toolkit for templates, customizable graphics, and more!