🎉 Celebrate Progress, Fuel the Future! 🎉

The approval of Vykat XR for the treatment of hyperphagia is a huge milestone for the PWS community! There’s so much to celebrate—but our work isn’t done. Our Celebration Series events are more than just a party; they’re a chance to come together, recognize how far we’ve come, and keep pushing for the future.

✨ Why host a PWS Celebration in your city?

  • Honor the dedication of Soleno Therapeutics, researchers, advocates, families, and all industry supporters who make milestones like this possible
  • Celebrate the strength and resilience of the PWS community
  • Raise awareness and strengthen local support
  • Keep the momentum going for future breakthroughs in PWS treatment & care

This event can be whatever fits your community—elevated, casual, or something totally unique! You name it, we’ll help make it happen.

🎉Bringing an event to your city is as easy as 1, 2, 3!🎉

  1. Connect with other PWS families & advocates in your area
  2. Pick a celebration type, and find a location
  3. Invite your network of friends, family, and local supporters to celebrate!

 Want to learn more? Contact Natalie@fpwr.org  for help with next steps!

Together, we celebrate. Together, we push forward. 💙

 

Thank you to our sponsors!

 

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Contact Us

Want to host a Celebration Series Event in your city? It's as easy as setting a date and inviting your family and friends!
Send an email to natalie@fpwr.org or fill out the form below, and we will help you get started. 

Send a message to our team: