Research Happens When YOU Take Action!

Since FPWR's launch in 2003, we have invested over $20M into PWS and SYS research. Nearly every dollar has come from affected families and their networks. If you want treatments for your loved one, fundraising is an empowering way to raise awareness and accelerate cutting-edge research. Our team is here to help, so take action today! 

 

Get Started Fundraising

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Your Impact

With the support of thousands of donors and fundraisers, FPWR has invested millions of dollars into critical PWS research. We've energized the field of PWS research, developed tools that have been used in labs around the world, and have attracted nearly a dozen PWS clinical trials. We have much to be proud of in our accomplishments but much work left to do. Until treatments have been found that eliminate the challenges of PWS, we must continue on.

Our work is only made possible by the incredible movers and shakers who take action for PWS research. 

 

Check Out Our Ready-To-Use Fundraising Concepts: 

 


Hope On Tap.
These casual events bring together family and friends to help raise funds while having an exceptionally good time. Our team works with you, the host, to find and book a location and set up an event page to sell tickets. Ready to invite your network to support PWS research? We have social posts, email templates, and more that our team can customize for your event. Questions? Ready to get started? Email  Natalie@fpwr.org 

 

One SMALL Step. Grab your walking shoes and take one SMALL Step for PWS research. Hosting a One SMALL Step can be as simple as finding a location, inviting your friends, and walking! Our team will set up your walk's fundraising page, help create materials to promote your event, and more!  Want to learn more about hosting an event in your neighborhood? Email Natalie@fpwr.org

 

Harvesting Hope Distance Challenge. This participate-from-anywhere challenge is open to all ages and fitness levels to promote health and wellness while supporting Prader-Willi and Schaaf-Yang syndrome research. The premise is simple. Set a mileage goal and log your miles with the Strava app October 10 - Thanksgiving Day. Then share your fundraising page to collect funds for critical PWS research! Join us today >>

 

Artist of the Year Competition & Art Auction. Break out your child's creative side for our annual Artist of the Year competition & Art Auction.  We send you the canvas, your child makes their masterpiece and YOU share them with the world! This annual fundraiser takes place annually during the month of May. Learn more >>

 

2024 Yu Family HH Fundraising Testimonial


 

Fundraising Resources

Let us help you keep the FUN in fundraising! Our team has developed resources and templates for all of your fundraising needs. Check out a few of our resources in our fundraising toolkit. Need something customized? Let us know! We are happy to help. 

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Contact Us

Our team is eager to help! Call 888-322-5487, email info@fpwr.org, or complete the short form below, and we will get back to you ASAP!

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