European PWS blood bank coordinator

Dr. Tauber is leading a European effort to collect blood samples on infants and children with PWS to monitor changes in hormones over time. This funding will support a blood bank recruitment coordinator, who will work to collect clinical data on birth, growth, endocrine functions and feeding behavior in newly diagnosed patients with PWS.

Research Outcomes:

High unacylated ghrelin levels support the concept of anorexia in infants with prader-willi syndrome. Beauloye V, Diene G, Kuppens R, Zech F, Winandy C, Molinas C, Faye S, Kieffer I, Beckers D, Nergårdh R, Hauffa B, Derycke C, Delhanty P, Hokken-Koelega A, Tauber M.  Orphanet Journal of Rare Diseases. 2016 May 4;11(1):56.

Funded Year:

2013

Awarded to:

Maithe Tauber, MD, PhD

Amount:

$35,000

Institution:

Centre de Référence Prader-Willi, Marin Hospital, France

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