Lauren Schwartz-Roth, clinical psychologist and mom to a young adult with PWS, shares insights on supporting siblings and recognizing serious mental health challenges in her new guide. Raising a family is never easy, and parenting a child with PWS adds extra layers of complexity. Because of the...
Source: FPWR Blog
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Published: April 4 2025 - 04:30 AM
FPWR maintains the latest clinical trial information so that you can stay abreast of trial opportunities. Some trials require in-person visits, while others can be completed remotely. Some trials are testing new drugs, while others are intervention (non-drug) or natural history studies. Details of...
Source: FPWR Blog
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Published: March 3 2025 - 03:00 AM
At the 2024 FPWR Conference, the session "Growing Up with a Sibling with PWS" offered a heartfelt and detailed look into the experiences of siblings of children with Prader-Willi Syndrome (PWS). Led by Dr. Lauren Schwartz Roth, a researcher and mother, the session shared insights from her year-long...
Source: FPWR Blog
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Published: December 12 2024 - 08:45 AM
Welcome to an inside look at some of the impactful research FPWR is supporting to improve the lives of individuals with Prader-Willi syndrome (PWS). In this interview, four of our dedicated research team members—Theresa Strong, Marc Ridilla, Lisa Burnett, and Caroline Vrana-Diaz—share updates on a...
Source: FPWR Blog
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Published: December 12 2024 - 09:30 AM
As 2024 draws to a close, we at the Foundation for Prader-Willi Research (FPWR) are reflecting on a year filled with progress, promise, and hope. This year’s achievements wouldn’t have been possible without the incredible dedication of our community—researchers, families, donors, and advocates—who...
Source: FPWR Blog
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Published: December 12 2024 - 09:30 AM
