In January 2008, The Dallas Morning News published an article titled “Parents Seek Answers.” At the center of the story was Kathryn McGhee, a mother navigating the daily realities of Prader-Willi syndrome while also helping shape a growing research movement that would become the Foundation for...
Source: FPWR Blog
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Published: May 5 2026 - 05:45 AM
Families raising a child with Prader-Willi syndrome know how difficult temper outbursts can be. In the study “The Characteristics of Temper Outbursts in Prader-Willi Syndrome,” Drs. Rice, Einfeld, and Woodcock, experts in the field of PWS, took a closer look at these behaviors to better understand...
Source: FPWR Blog
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Published: April 4 2026 - 05:45 AM
Parents of children with Prader-Willi syndrome don’t need to be told that caregiving is hard — you live it every day. You juggle medical complexity, behavioral challenges, constant vigilance around food, and the emotional weight of advocating for your child in systems that don’t always understand...
Source: FPWR Blog
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Published: March 3 2026 - 05:45 AM
When it comes to dermatological or skin issues in PWS, the first things that may come to mind are sensitivity to the sun due to fair skin and skin picking. However, there are a variety of additional skin-related concerns for individuals with PWS.
Source: FPWR Blog
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Published: March 3 2026 - 09:00 AM
Families living with Prader-Willi syndrome are changing how PWS is understood, studied, and treated.
Source: FPWR Blog
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Published: February 2 2026 - 06:00 AM
