FPWR has once again partnered with COMBINEDBrain to collect blood and urine samples for our PWS & SYS biorepositories.
Researchers are waiting for samples to complete their work!
Samples are needed from people with:
- PWS by deletion
- PWS by UPD
- PWS by ID
- SYS (all mutation types)
Your loved one with PWS or SYS can provide a blood and urine sample at NO COST at any of our ROADSHOW events and sample donors will receive a $100 Amazon gift card.
For more information and to sign up for one of our roadshow events, please email: Jessica Bohonowych at FPWR, jessica.bohonowych@fpwr.org. Pre-registration is recommended.
