Your Blood and Urine Sample Will Help Establish a PWS & SYS Biorepository

FPWR has once again partnered with COMBINEDBrain to collect blood and urine samples for our PWS & SYS biorepositories.

Researchers are waiting for samples to complete their work!

Samples are needed from people with:

  • PWS by deletion
  • PWS by UPD
  • PWS by ID
  • SYS (all mutation types) 

Your loved one with PWS or SYS can provide a blood and urine sample at NO COST at any of our ROADSHOW events and sample donors will receive a $100 Amazon gift card.

For more information and to sign up for one of our roadshow events, please email: Jessica Bohonowych at FPWR, jessica.bohonowych@fpwr.org. Pre-registration is recommended.

CombinedBrain 2024 dates