Study Purpose Carbetocin (ACP-101) is an investigational drug that binds with oxytocin receptors with greater sensitivity than oxytocin, a naturally occurring hormone. Carbetocin is not approved in the United States but is approved in some other countries for the treatment of women with excessive bleeding after giving birth via cesarean section.
Study Purpose GLWL is conducting a Phase 2 clinical trial to to evaluate the efficacy, safety, and pharmacokinetics of GLWL-01 in treating hyperphagia in patients with PWS. Participants will be assigned to one of two treatment sequences (GLWL-01/Placebo or Placebo/GLWL-01), with each sequence consisting of two treatment periods separated by a washout period.
Researchers at Vrije University in Amsterdam are conducting a study to better understand how individuals with PWS perceive and feel pain. For more information, please see the recruitment flyer for the Pain Questionnaire study and contact postdocteam.fgb@vu.nl.
In this study, adults will be interviewed 3 times over a 6 month period will be asked questions about personal and family health, family history and routines and what everyday living is like caring for a child with PWS.
Researchers at Vanderbilt Kennedy Center in Nashville, Tennessee are conducting a study to improve and learn new social skills in PWS with an online social skills group. The project uses your home computer/laptop with webcam to participate in a group of PWS friends aged 16-26 years. The group will meet 3X/week for 10 weeks. For more information, please contact: Hailee Hunt-Hawkins hailee.m.hunt@vanderbilt.edu at 615-343-0915 Elizabeth Roof elizabeth.roof@vanderbilt.edu at 615-343-3330
CSU Fullerton is excited to invite families to participate in a study investigating a parent-led physical activity program for children ages 4 to 7 years old with and without PWS. A child ages 4-7 years with or without PWS and one parent per family are invited to participate.
A New Web-Based Research Study on Cognition and Behavior in PWS is Recruiting Participants A study is being conducted by Researchers at the University of California, Los Angeles. The study will investigate cognition and behavior in a population of individuals between the ages of 10 and 50 with a diagnosis of Prader-Willi Syndrome (PWS). You can participate if you yourself have Prader-Willi Syndrome, or if you are the parent of a child between the ages of 10-50 with PWS. Participation may take up to an hour and a half. There is no travel required as the study is web-based which means that you will be asked to complete online clinical and neurocognitive forms. If you have any questions about this research study, please call Ariana Vajdi at 310-825-3458 or e-mail beardenlab.ucla@gmail.com
PRETEND (Parent‐focused Remote Education to Enhance Development) Research Study Information for Parents What is the goal of this research? This research study has two main goals.
