Clinical Trials Opportunities

Theresa Strong

Theresa V. Strong, Ph.D., received a B.S. from Rutgers University and a Ph.D. in Medical Genetics from the University of Alabama at Birmingham (UAB). After postdoctoral studies with Dr. Francis Collins at the University of Michigan, she joined the UAB faculty, leading a research lab focused on gene therapy for cancer and directing UAB’s Vector Production Facility. Theresa is one of the founding members of FPWR and has directed FPWR’s grant program since its inception. In 2016, she transitioned to a full-time position as Director of Research Programs at FPWR. She remains an Adjunct Professor in the Department of Genetics at UAB. She and her husband Jim have four children, including a son with PWS.

Recent Posts

Web-based Study on Cognition and Behavior in PWS

A New Web-Based Research Study on Cognition and Behavior in PWS is Recruiting Participants A study is being conducted by Researchers at the University of California, Los Angeles. The study will investigate cognition and behavior in a population of individuals between the ages of 10 and 50 with a diagnosis of Prader-Willi Syndrome (PWS). You can participate if you yourself have Prader-Willi Syndrome, or if you are the parent of a child between the ages of 10-50 with PWS. Participation may take up to an hour and a half. There is no travel required as the study is web-based which means that you will be asked to complete online clinical and neurocognitive forms. If you have any questions about this research study, please call Ariana Vajdi at 310-825-3458 or e-mail beardenlab.ucla@gmail.com

Studies on Task Switching and Temper Outbursts in PWS

Dr. Kate Woodcock is studying "task switching" difficulties in PWS. People with PWS have deficits in their ability to task switch, and this may contribute to repetitive behaviors and temper outbursts (see a recent blog here, and information about Dr. Woodcock's FPWR supported study, here). Dr. Woodcock's group is recruiting for three studies related to this issue.

Transcranial Direct Current Stimulation for Hyperphagia in PWS

Dr. Merlin Butler and colleagues at Kansas University Medical Center will be working with Dr. Fregni (Harvard University) and Dr. Weisensel (Prader-Willi Homes of Oconomowoc) to evaluate the effects of a weak, noninvasive form of brain stimulation on food cravings and overeating in adults with Prader-Willi syndrome. More background information about the study is available here, and more details about the clinical trial, including contact information, is available here. Find more information about hyperphagia here.

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