Study Purpose
The Acceptance and Commitment Training (ACT) Study will examine the effectiveness of ACT training for fathers of adolescents ages 13-18 with PWS with the goal of improving life satisfaction, reducing stress and improving family functioning. This remote study will use Zoom video conferencing to provide 4 sessions of ACT training.
The study is seeking fathers who have an adolescent with PWS age 13-18 to participate in a 4-session, on-line, small group training exercise to reduce father’s perception of stress, improve parenting satisfaction and increase family involvement. Participants must reside at home with their adolescent and the adolescent’s mother, have a personal computer with a camera, microphone and internet access, and agree to privacy and confidentiality of shared information. They must be able to read and speak English. Sessions will be scheduled to accommodate 8 fathers per group. After an initial 90 minute session, three additional 60 minute training sessions will occur at a frequency of every other week. Additional “on-your-own” time will be needed to practice newly acquired skills. Both fathers and mothers will be required to participate in a brief screening interview by phone and then complete several on line questionnaires at the outset, during the study, and at the conclusion of the study. These questionnaires will assess stress, family function and behaviors unique to the adolescent with PWS.
This study is funded by the Foundation for Prader-Willi Research and is being conducted by Dr. Janice Forster and Dr. Stuart Libman with help from Dr. Marjorie Royle and Dr. Lauren Roth.
Recruitment Criteria
Study Type: intervention, all patients will receive treatment
Eligible Ages: fathers whose loved one with PWS is between 13-18 years old
Trial Details
Trial Id: N/A
Duration: 4 sessions
Status: recruiting
Countries: All
Additional Details: This study will be conducted remotely via phone, email and video-conference
Contact Information
For more information, or to enroll, please contact Dr. Forster at 412-247-5822.
