A special contribution by guest blogger Jennifer Hannabass
Jennifer shared her story via our Stories of Hope questionnaire.
How has your child exceeded your expectations?
Every day!
Who has helped you in your PWS journey?
My family and friends.
Describe a time you surprised yourself with your ability to do the impossible.
Just fighting for my son, for therapies and other medical stuff.
What would you say to a parent whose child has recently been diagnosed with PWS?
Your child can do anything! Don't limit them.
What gives you hope for the future?
Knowing that the research being done now will help my child's future.
What are you thankful for?
All of the therapists, teachers and family support.
What positive life lessons have you learned from having a child with PWS?
Nothing is impossible, and they will prove everyone wrong.
What does this quote mean to you?:
“Until you have a kid with special needs, you have no idea of the depth of your strength, tenacity and resourcefulness.”
When you have a regular child, you already know that they will reach their goals, no question. When you have a special needs child, every milestone is a blessing, and no one understands you except other special needs parents.
What does this quote mean to you?:
“Most people see what is, and never see what can be.”
They only see the disability, not the person. They will only judge by looks and not by personality.
Do you have a story of hope to share with others about your experiences with PWS? Send it to us!