Foundation for Prader-Willi Blog | Stories of Hope (8)

I Turn to PWS Research for Hope, and to Other PWS Moms for Help

A special contribution by guest blogger Maegan Richard Maegan shared her story via our Stories of Hope questionnaire. How has your child exceeded your expectations? When Cade was born, he was so lifeless and fragile. He kept the doctors on their toes...

March 31, 2017 Read More

Topics: Stories of Hope

Your Child Is So Much More Than a PWS Diagnosis

A special contribution by guest blogger Melissa Demand Melissa shared her story via our Stories of Hope questionnaire. How has your child exceeded your expectations? We were lucky that in NICU and through our geneticist, we only heard about what he w...

March 24, 2017 Read More

Topics: Stories of Hope

Your Child Can and Will Have Successes You Can Barely Imagine

A special contribution by guest blogger Dan Yashinsky Dan shared his story via our Stories of Hope questionnaire.

March 17, 2017 Read More

Topics: Stories of Hope

What I Wish They Had Told Me About PWS

A special contribution by guest blogger Amber Rector The day I found out I was pregnant, I imagined myself carrying to term, pushing out a healthy baby and going home the standard two to three days later. I would arrive home with my new bundle of joy...

March 10, 2017 Read More

Topics: Stories of Hope

Don't Worry About the Small Stuff and Be Patient

A special contribution by guest blogger Teri Douglas Teri shared her story via our Stories of Hope questionnaire.

March 3, 2017 Read More

Topics: Stories of Hope

There is Goodness and Hope Up Ahead

A special contribution by guest blogger Anna Beasley Anna shared her story via our Stories of Hope questionnaire. How has your child exceeded your expectations? In so many different ways, she just keeps fighting. We weren't given a lot of hope at fir...

February 24, 2017 Read More

Topics: Stories of Hope

Everything and More: A Father's Journey Into the World of PWS

A special contribution by guest blogger Tony Chambers When I was 10 years old, I realized I was never going to see my dad again. He didn’t die, he just packed up and disappeared one day. I was 4 when my mom knocked on his empty apartment door wonderi...

February 17, 2017 Read More

Topics: Stories of Hope

How One Family Turned March Madness into PWS Awareness

Nikol Maher, mom to Jack, turned her fear into determination using the family's love of sports. Tell us about your family and how you connected to FPWR. Jack was diagnosed with PWS when he was 3 weeks old. The news devastated our family and we could ...

February 10, 2017 Read More

Topics: Stories of Hope

Harvesting Hope for PWS: Rachael Fischer and Julie Foge

While most of us spent this last Thanksgiving morning prepping a feast, watching football or entertaining family, Rachael Fischer and Julie Foge rose before the sun to host more than 850 runners for the 2nd annual Harvesting Hope 5K race. The event t...

February 3, 2017 Read More

Topics: Stories of Hope

Foundation for Prader-Willi Blog | Stories of Hope (8)

Categories

I Turn to PWS Research for Hope, and to Other PWS Moms for Help

Your Child Is So Much More Than a PWS Diagnosis

Your Child Can and Will Have Successes You Can Barely Imagine

What I Wish They Had Told Me About PWS

Don't Worry About the Small Stuff and Be Patient

There is Goodness and Hope Up Ahead

Everything and More: A Father's Journey Into the World of PWS

How One Family Turned March Madness into PWS Awareness

Harvesting Hope for PWS: Rachael Fischer and Julie Foge

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