Topics: Stories of Hope
A special contribution by guest blogger Deb Cooper Deb shared her story via our Stories of Hope questionnaire.
Paul Golub’s 30th anniversary working for Walmart in Athens, GA, was just around the corner, when his upper management approached him and asked what he would like to do to celebrate the occasion. After spending some time thinking about it, he remembe...
Topics: Stories of Hope
I recently had the joy of attending the One SMALL Step walk in Washington, D.C. on June 1, 2019. Being that I am involved daily in the One SMALL Step community, often helping in the background with technology, logistics, communications and coaching, ...
Topics: Stories of Hope
A special contribution by guest blogger Allison Shelton Allison shared her story via our Stories of Hope questionnaire.
Topics: Stories of Hope
A special contribution by guest blogger Marissa Marinan Marissa shared her story via our Stories of Hope questionnaire.
Topics: Stories of Hope
As my second month in my new role as FPWR's CEO concludes, I would like to reflect on some of my early observations and experiences with this truly incredible Prader-Willi community. During the short time I've been in this role, I've met or spoken wi...
Topics: Stories of Hope
A special contribution by One Small Step host Bailey Beasley “Something came back on the microarray.” We had just landed after being care flighted to a large children’s hospital. We had been in the NICU in our hometown for two weeks with undiagnosed ...
Topics: Stories of Hope
A special contribution by Brian Kalasek My introduction to PWS probably started very similar to other PWS families. We were admitted to the NICU on day 3 of Paxton’s life. He hadn’t really “woken up” yet, but the nurses and doctors up to that point d...
Topics: Stories of Hope
Becky McWilliams and Samantha (Sam) Chipetz are a force to be reckoned with! In addition to managing successful careers and juggling a family, therapy appointments and play dates, these two hard working moms have been fundraising for PWS research for...
Topics: Stories of Hope