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Foundation for Prader-Willi Blog | Stories of Hope (2)

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Artist of the Year 2023 Winners

A special blog contribution from our 2023 FPWR Art Auction Participants! Our 2023 Artist of the Year competition was a great success, raising critical funds for PWS research! We extend our heartfelt gratitude to all our extraordinary artists who part...
August 8, 2023 Read More

Topics: Stories of Hope

'It’s a Beautiful Gift I Never Expected' Says SYS Hero and Mom

A special blog contribution from Roya Malaekeh. People often ask what it was like getting a diagnosis, especially since we had endured a year without one. When I got that phone call from the geneticist, it felt like a boulder was lifted off my chest ...
July 13, 2023 Read More

Topics: Stories of Hope

'She Gets Stronger Every Day' Says SYS Mom Inspired by Daughter

A special blog contribution from Stephanie McDade. Last week Gibson rode a tricycle. She pedaled and steered on her own for a good five minutes on the sidewalk of our city block. This is real progress for a 8-year-old who doesn’t walk independently a...
June 6, 2023 Read More

Topics: Stories of Hope

‘He Shows Me Everyday What a True Superhero Looks Like’ Says PWS Mom

A special contribution by guest blogger Heather Osterman. Max came into the world with a bang...or more accurately, a limp body, not breathing, and blue. I went from being induced, since Max was quite cozy where he was, to a long labor, to an emergen...
May 31, 2023 Read More

Topics: Stories of Hope

‘The Amount of Love and Light He’s Brought to Our Lives Is Immeasurable’

A special contribution by guest blogger Rebecca Noel On May 25th our beautiful son Bron arrived to our tears of joy. He was so tiny and precious, and needed time in the NICU. He seemed to be making wonderful progress and we were full of hope. We had ...
May 2, 2023 Read More

Topics: Stories of Hope

'She Is Tough, She Is a Fighter' Says PWS Mom Inspired by Daughter

A special blog contribution from Krysten Leighty. Krysten shared her story via our Stories of Hope Questionnaire.
March 2, 2023 Read More

Topics: Stories of Hope

‘The Small Stuff Doesn’t Matter’: A Story of Hope from Sheri Mills

A special blog contribution from Sheri Mills. Sheri shared her story via our Stories of Hope Questionnaire.
January 26, 2023 Read More

Topics: Stories of Hope

‘She’s Changed Our Family Forever’: Claire Carucci’s Story of Hope

A special contribution by guest blogger Claire Carucci. Our 17-month-old daughter Caroline has Prader-Willi syndrome (PWS), and it has forced me to be stronger than I ever thought I would need to be. When I was looking at this little baby in the hosp...
September 20, 2022 Read More

Topics: Stories of Hope

'Change Invites Us to Reimagine, and That’s Such a Gift' Says PWS Hero

A special contribution by guest blogger Julie Foge Eliza turned eight this month, and it’s hard to put into words just how much our life has changed in that span of time. I knew it would the moment we got her diagnosis, of course, but it didn’t happe...
August 30, 2022 Read More

Topics: Stories of Hope

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Phone: 888-322-5487
Email: info@fpwr.org

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