Foundation for Prader-Willi Blog | Stories of Hope (11)

In the summer of 1999, Mark Roth and Lauren Schwartz-Roth of Seattle, WA were expecting their first child with great anticipation. However, during the pregnancy, Lauren noticed decreased fetal movement, and when the doctor confirmed that the baby was...

“Happy 30th Birthday to you, Keegan Johnson, and, by the way, your son has Prader-Willi syndrome!” Although the news wasn’t delivered in song, that was what was presented to Keegan and Tanya Johnson on the day they planned to celebrate Keegan’s first...