New call-to-action
New call-to-action
New call-to-action

Foundation for Prader-Willi Blog | Stories of Hope (10)

Categories

It's Not Normal, It's Better: A Letter to Prader-Willi Siblings

A special contribution by guest blogger Courtney Smith A letter to Prader-Willi siblings: Recently, a woman asked if I would be willing to speak with her teenage daughter who was struggling having a brother with Prader-Willi Syndrome. Of course I pro...
November 23, 2016 Read More

Topics: Stories of Hope

Parents of Children With Special Needs: We're Unstoppable!

A special contribution by guest blogger Rosemarie Rouse Rosemarie shared her story via our Stories of Hope questionnaire.
November 17, 2016 Read More

Topics: Stories of Hope

She's Shown Us Our Own Strength, Determination, Love and Acceptance

A special contribution by guest blogger Anne Fricke Anne shared her story via our Stories of Hope questionnaire.
November 10, 2016 Read More

Topics: Stories of Hope

Our Son Makes Everyone He Meets Feel Special

A special contribution by guest blogger Elizabeth DeSimone Elizabeth shared her story via our Stories of Hope questionnaire.
October 27, 2016 Read More

Topics: Stories of Hope

My Son Enriches My Life In Every Way

A special contribution by guest blogger Natalie Neto Natalie shared her story via our Stories of Hope questionnaire.
October 24, 2016 Read More

Topics: Stories of Hope

A Father's Biggest Dream: A Fulfilling, Independent Life for His Son

Our FPWR community has no shortage of amazing fathers. We honor your selfless commitment to supporting your children and helping to insure a brighter future for them. We asked Josh Gilliam, dad to Jackson, to share his FPWR story in honor of all dads...
June 19, 2016 Read More

Topics: Stories of Hope

[VIDEO] Parents Find Love and Energy In FPWR Community

We asked parents how they became involved with FPWR. This video shares their responses.
March 1, 2016 Read More

Topics: Stories of Hope, Research

[VIDEO] Olivia Viroslav: 'Every One of Your Children Has a Good Future'

Olivia Viroslav graduated from Alamo Heights High School in San Antonio, TX in the top third of her class with an A average for all 4 years. She was also on the A/B Honor Roll every semester. While in high school, she was very involved with her youth...
October 9, 2014 Read More

Topics: Stories of Hope

Our Daughter Constantly Surprises Us and Exceeds Our Expectations

In the summer of 1999, Mark Roth and Lauren Schwartz-Roth of Seattle, WA were expecting their first child with great anticipation. However, during the pregnancy, Lauren noticed decreased fetal movement, and when the doctor confirmed that the baby was...
February 14, 2014 Read More

Topics: Stories of Hope

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

4star120x60

NORD_MembershipLogo_Platinum_2021

excellence-in-giving-logo

Main Menu

Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Contact Us

Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

FPWR
440 N Barranca Ave #3620
Covina, CA 91723

Copyright © 2020. All Rights Reserved. Terms of Use. Privacy Policy. Copyright Infringement Policy. Disclosure Statement.