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Research (7)

VNS4PWS Clinical Trial Opens for Enrollment

January 8, 2024

The Foundation for Prader-Willi Research is pleased to announce our VNS4PWS clinical trial is now open and enrolling participants with PWS ages 10-40 who experience disruptive behaviors and temper outbursts. Vagus Nerve Stimulation (VNS) uses brief electrical impulses to stimulate

Presentations and Management of Sleep Disorders in PWS [2023 Conference Video]

December 20, 2023

In this 1 hour and 2‑minute video, Dr. Jessica Duis, an Associate Professor of Pediatrics and Genetics at Children’s Hospital Colorado, University of Colorado, will highlight presentations of sleep disorders in PWS, diagnostic evaluation, and treatment considerations. Click below to

malignancies-in-prader-willi-syndrome-what-new-research-reveals

Cancer in Prader-Willi Syndrome: What Research Reveals

December 19, 2023

The core features of Prader-Willi syndrome (PWS) are well known: challenges with the hypothalamus, low muscle tone, hyperphagia, behavioral issues, and a lifelong risk of obesity and related complications. Thanks to earlier diagnosis, improved clinical care, and dedicated lifestyle interventions,

PWS Registry Data: Swallow Studies [INFOGRAPHIC]

December 14, 2023

For individuals with PWS, when it comes to food there is a lot of focus on hyperphagia (excessive hunger). However, another issue associated with mealtimes can be the physical act of eating and drinking itself. Many individuals with PWS struggle

2023 PWS Research Symposium - Sharing Progress, Fostering Collaborations

November 20, 2023

One of the most important roles FPWR serves is that of a ‘convener’, bringing together those with an interest in advancing the science of PWS, and the care of those living with PWS. On Oct 5-6, 2023, FPWR held its

FPWR Announces 2nd Round of 2023 Grants

November 14, 2023

We are pleased to announce the recipients of the second round of grants for 2023, totaling $1,000,000 in awards, as part of the Foundation for Prader-Willi Research's (FPWR) ongoing commitment to advancing research in Prader-Willi (PWS) and Schaaf-Yang (SYS) syndromes.

New PWS β-Cell Model Reveals Details Underlying Insulin Secretion Defects

July 25, 2023

Sugar glucose is the body’s primary source of energy. Maintaining a healthy level of glucose in blood (not too high or too low), so that it can be delivered to all the other tissues of the body, is regulated by

Exciting New Treatment May Reduce Disruptive Behaviors in PWS

July 25, 2023

Evidence from FPWR-supported studies shows that Vagus Nerve Stimulation (VNS) may reduce temper outbursts and other disruptive behaviors in individuals with PWS. With your support, FPWR is taking the steps needed to advance a clinical trial of a VNS device

PWS Registry Data: Dental Issues [INFOGRAPHIC]

June 26, 2023

Dental issues in PWS can result from symptoms directly related to PWS, such as low saliva production, combined with challenges that individuals with special needs may have with maintaining good oral hygiene. Here, we focus on data from the Global

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