Foundation for Prader-Willi Blog

Malignancies in Prader-Willi Syndrome: What New Research Reveals

Many of the symptoms of Prader-Willi syndrome (PWS) are well known, including problems with the hypothalamus, low muscle tone, hyperphagia, behavioral issues, and the risk of obesity and related complications. However, as people with PWS are living l...

December 19, 2023 Read More

Topics: Research

PWS Registry Data: Swallow Studies [INFOGRAPHIC]

For individuals with PWS, when it comes to food there is a lot of focus on hyperphagia (excessive hunger). However, another issue associated with mealtimes can be the physical act of eating and drinking itself. Many individuals with PWS struggle with...

December 14, 2023 Read More

Topics: Research

2023 PWS Research Symposium - Sharing Progress, Fostering Collaborations

One of the most important roles FPWR serves is that of a ‘convener’, bringing together those with an interest in advancing the science of PWS, and the care of those living with PWS. On Oct 5-6, 2023, FPWR held its annual PWS Research Symposium – our ...

November 20, 2023 Read More

Topics: Research, Learning

FPWR Announces 2nd Round of 2023 Grants

We are pleased to announce the recipients of the second round of grants for 2023, totaling $1,000,000 in awards, as part of the Foundation for Prader-Willi Research's (FPWR) ongoing commitment to advancing research in Prader-Willi (PWS) and Schaaf-Ya...

November 14, 2023 Read More

Topics: Research, SYS

Recordings from FPWR’s Annual Family Conference: What’s Next for DCCR?

Soleno Therapeutics recently shared data from their DESTINY PWS study, an international, placebo-controlled Phase 3 study of DCCR (Diazoxide Choline Controlled-Release) drug trial. To further establish the effects of DCCR administration on hyperphagi...

October 25, 2023 Read More

Topics: News, Hunger Satiety, Research

Progressive Resistance Training in Young People With PWS: Protocol for a Randomized Trial (PRESTO)

It is well known that individuals with Prader-Willi syndrome (PWS) display muscle weakness, hypotonia, and decreased lean muscle mass. Those with PWS have a 25–40% decrease in muscle mass compared to non-affected individuals, and muscle strength is a...

September 13, 2023 Read More

Topics: Research

New PWS β-Cell Model Reveals Details Underlying Insulin Secretion Defects

Sugar glucose is the body’s primary source of energy. Maintaining a healthy level of glucose in blood (not too high or too low), so that it can be delivered to all the other tissues of the body, is regulated by the hormone insulin. Insulin is produce...

July 25, 2023 Read More

Topics: Research

Exciting New Treatment May Reduce Disruptive Behaviors in PWS

UPDATE, January 2024: The VNS4PWS clinical trial is now enrolling participants ages 10-40 years old. Learn more about the study here >> Recent evidence from FPWR-supported studies shows that Vagus Nerve Stimulation (VNS) may reduce temper outbu...

July 25, 2023 Read More

Topics: Research

PWS Registry Data: Dental Issues [INFOGRAPHIC]

Dental issues in PWS can result from symptoms directly related to PWS, such as low saliva production, combined with challenges that individuals with special needs may have with maintaining good oral hygiene. Here, we focus on data from the Global PWS...

June 26, 2023 Read More

Topics: Research

Foundation for Prader-Willi Blog | Research (4)

Categories

Malignancies in Prader-Willi Syndrome: What New Research Reveals

PWS Registry Data: Swallow Studies [INFOGRAPHIC]

2023 PWS Research Symposium - Sharing Progress, Fostering Collaborations

FPWR Announces 2nd Round of 2023 Grants

Recordings from FPWR’s Annual Family Conference: What’s Next for DCCR?

Progressive Resistance Training in Young People With PWS: Protocol for a Randomized Trial (PRESTO)

New PWS β-Cell Model Reveals Details Underlying Insulin Secretion Defects

Exciting New Treatment May Reduce Disruptive Behaviors in PWS

PWS Registry Data: Dental Issues [INFOGRAPHIC]

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