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Foundation for Prader-Willi Blog | Research (39)

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Got baby teeth? Your child’s lost teeth could be the key to understanding neuronal changes in PWS!

Considering the complex neurological basis of PWS, one major hurdle in conducting PWS research is obtaining neurons, i.e. studying neurons without taking brain samples. Pluripotent stem cells are a phenomenal resource as they can be coaxed into becom...
December 9, 2013 Read More

Topics: Research

New York City Gala Raises $94,000 for Prader-Willi Research!

Over 260 people attended the 1st Annual New York City Live Life Full Gala held November 15, 2013 at the historic India House in lower Manhattan. The event included cocktails & hors d’oeuvres, food stations, live jazz, a silent auction and a live ...
December 1, 2013 Read More

Topics: Research

Are there benefits to testosterone replacement therapy in adult males with PWS?

One well established characteristic of PWS is altered development and function of reproductive systems. This can include hypogonadism; under-development of sexual organs, particularly the testes in males; precocious puberty; and infertility.
October 28, 2013 Read More

Topics: Research

A Game Changer for PWS Genetics

A fascinating new paper has turned PWS genetics on its head, and has important implications for understanding the underlying disruptions that cause PWS. As anyone who is familiar with PWS knows, the genetics of this disorder is very complex.
October 8, 2013 Read More

Topics: Research

First, Do No Harm... An Internet Warning

FPWR, along with Dr. Jennifer Miller and Janalee Heinemann, Director of Research and Medical Affairs, Prader-Willi Syndrome Association (USA), would like to share a reminder with families:
October 1, 2013 Read More

Topics: Research

New Study Examines How Drugs Can Regulate Gene Expression. Important Steps Toward Reactivating the Maternal Allele

“Isn’t there a way to just ‘turn on’ the silent PWS genes on chromosome 15?” It's a common question amongst the PWS community. The PWS genes on the maternal chromosome 15 are present but silenced in all people with PWS, regardless of genetic subtype.
September 15, 2013 Read More

Topics: Research

Empowering Our Community: One SMALL Step Leads to BIG Leaps

While always impressed by the achievements of our community, I could never have imagined how our walks could grow our community, bring us all together and raise MILLIONS of dollars for Prader-Willi Research!! Since our first One SMALL Step walk, we h...
September 12, 2013 Read More

Topics: Research

PWS People: Dedicated Researcher Joins Our Cause AND Our Community

We're pleased to bring you this guest blog by Yinna Ng, FPWR Volunteer Our PWS community is a strong and cohesive one that achieves great things. While a large part of it is built on the determination and strength of families and friends of those wit...
September 5, 2013 Read More

Topics: Research

Breaking Boundaries: Bringing Parents and Researchers Together at the FPWR Research Conference

We're pleased to bring you this guest blog by Ali Shenk, FPWR Volunteer and Conference Participant As usual, the recent FPWR conference in San Antonio, TX, did not disappoint! Kudos once again to the Viroslav family and the rest of the San Antonio te...
September 1, 2013 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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