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Foundation for Prader-Willi Blog | Research (33)

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Can PWS Interventions Be Delivered By Telehealth?

Telehealth, or the "delivery of health-related services and information via telecommunications" such as through a computer is a growing trend in health care. A recent report from a group at Michigan State University shows how their online program is ...
July 27, 2016 Read More

Topics: Research

Intellectual Disability Treatment: New Down Syndrome Possibilities

One of the fundamental questions in research for complex neurodevelopmental disorders such as PWS is – can the cognitive challenges of the disorder ever be improved using drugs or supplements? A decade ago, most scientists would have argued that the ...
July 21, 2016 Read More

Topics: Research

Cavaille's Newly Funded Ribosomal Research Shows Promise for PWS

Dr. Jerome Cavaille and his team at the University of Toulouse in France recently received a three-year grant from the French Foundation for Medical Research for the project "Prader-Willi syndrome and C/D small nucleolar RNA genes." They hypothesize ...
July 18, 2016 Read More

Topics: Research

How Children With Language Delays Can Succeed in the Classroom

Within the general population, there is a reading crisis in America. Many Americans only achieve a fifth- or sixth-grade reading level. If that's the case with the general population, how serious is the problem among those who have severe speech/lang...
July 15, 2016 Read More

Topics: Research

Feeding Children with PWS: Speaker Melanie Silverman

Feeding difficulties are common in young children with Prader-Willi syndrome, and it's common for parents to struggle with feeding children with PWS. Many parents seek nutrition advice to help implement a healthy diet, and over the past 12 years, hun...
July 14, 2016 Read More

Topics: Research

Mental Health in PWS – Mindfulness, Exercise May Help

Staying mentally well can be a challenge for all of us, but is particularly difficult for those with PWS. While medications can be an important part of maintaining good mental health in PWS, we're always on the lookout for approaches and intervention...
July 11, 2016 Read More

Topics: Research

New CRISPR Gene Editing Options Focus on RNA

If you pay attention to science 'buzz', you've probably heard of CRISPR technology. This technology allows scientists to precisely modify DNA sequences. First adapted for genome editing in 2013, use of CRISPR systems has exploded in research labs, al...
June 27, 2016 Read More

Topics: Research

Telehealth: PWS Healthcare Through Your Computer

Telehealth, or the "delivery of health-related services and information via telecommunications" such as through a computer is a growing trend in health care. A recent report from a group at Michigan State University shows how their online program is ...
June 22, 2016 Read More

Topics: Research

Ghrelin Research Explores Switch from Failure to Thrive to Obesity

Dr. Maithé Tauber and colleagues recently reported interesting results on the hunger hormone ghrelin. They show that the ratio of active (AG) to inactive (UAG) forms of ghrelin changes over time. They hypothesize that this change may play a role in t...
June 20, 2016 Read More

Topics: Research

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The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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