Foundation for Prader-Willi Blog

PWS Grants & Discoveries, Message to FDA on Drug Development [Webinar]

On December 14, FPWR gave its quarterly webinar reporting on our PWS grants, and on recent research discoveries. In the webinar, which you can watch below, I recapped a recent meeting at the FDA, shared information on the new grants we've funded, and...

December 21, 2016 Read More

Topics: Research

You Can Help FPWR Better Understand Mental Wellness in PWS

We know that mental health is a critical part of quality of life for all individuals with PWS, and something every family wants to improve for their loved one with PWS. Two exciting projects below offer opportunities to contribute to PWS mental welll...

December 19, 2016 Read More

Topics: Research

Announcing our Second Round of PWS Research Grants from 2016!

The Foundation for Prader-Willi Research (FPWR), in collaboration with FPWR-Canada and FPWR-UK, is thrilled to announce our second round of PWS research recipients for 2016! Eight outstanding projects were selected for funding, totaling $746,200 in s...

December 12, 2016 Read More

Topics: Research

Language Delays and Success in the Classroom: Presentation by Ellen Brigger, M.Ed [VIDEO]

Many children with PWS are affected by early language delays. If those delays aren't addressed, the affects can be far-reaching, not just in school, but beyond. Research on these delays shows a number of therapies to be very effective, but it isn't r...

December 7, 2016 Read More

Topics: Research

Can Brain Stimulation Devices Modify Behavior or Hyperphagia in PWS?

Many of the symptoms of PWS, including hyperphagia and behavior issues, likely originate in atypical structure and/or function of neurons in the brain. This presents an additional challenge to designing drug therapies for PWS, because drugs targeted ...

December 1, 2016 Read More

Topics: Research

Improving Social Functioning in PWS [VIDEO]

“People with PWS have a real need to actually connect with others and have relationships." This was one of the many valuable insights shared by Elizabeth Roof, Senior Research Specialist at Vanderbilt University, and other panelists addressing social...

November 21, 2016 Read More

Topics: Research

Sleep Issues in PWS: Presentation by Dr. Thomas Scammell [VIDEO]

Many individuals with PWS experience significant disruption of daily life as a result of sleep issues. Daytime sleepiness, abnormal REM sleep, narcolepsy, and cataplexy are common sleep-related symptoms of PWS, however their underlying cause is unkno...

November 3, 2016 Read More

Topics: Research

Roadmap for the Future: The PWS Research Plan 2017-2021

Prader-Willi syndrome is a complex genetic disorder affecting nearly every system in the body. A challenge with this level of complexity requires a well thought out strategy to overcome. The Foundation for Prader-Willi Research, with the input of com...

October 20, 2016 Read More

Topics: Research

Mental Health Professionals Release 10 PWS Research Recommendations

Mental health professionals have published 10 recommendations for Prader-Willi syndrome (PWS) research. These recommendations create urgency for further research and treatments to improve quality of life and increase independence for people with PWS....

October 13, 2016 Read More

Topics: Research

Foundation for Prader-Willi Blog | Research (31)

Categories

PWS Grants & Discoveries, Message to FDA on Drug Development [Webinar]

You Can Help FPWR Better Understand Mental Wellness in PWS

Announcing our Second Round of PWS Research Grants from 2016!

Language Delays and Success in the Classroom: Presentation by Ellen Brigger, M.Ed [VIDEO]

Can Brain Stimulation Devices Modify Behavior or Hyperphagia in PWS?

Improving Social Functioning in PWS [VIDEO]

Sleep Issues in PWS: Presentation by Dr. Thomas Scammell [VIDEO]

Roadmap for the Future: The PWS Research Plan 2017-2021

Mental Health Professionals Release 10 PWS Research Recommendations

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