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Foundation for Prader-Willi Blog | Research (27)

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Human Growth Hormone Dosing for PWS

This article is adapted from a presentation by Jennifer Miller, Ph.D. Human growth hormone therapy for PWS been proven to improve characteristic delays in physical and social development, and the cognitive benefits of human growth hormone for PWS are...
July 10, 2017 Read More

Topics: Research

Reiter Studies PWS Genetics With Dental Pulp Stem Cells

You may have seen requests for parents to donate the lost baby teeth of their children with PWS for research. What can these baby teeth do for Prader-Willi research? The answer is that Dr. Lawrence Reiter has implemented a novel technique for studyin...
July 6, 2017 Read More

Topics: Research

Incidence of Autism In People With PWS Lower Than Previously Thought

The potential overlap between PWS and symptoms of autism spectrum disorder (ASD) has been the subject of discussion and research for some time now. In the past, research found estimates of autism in people with PWS to be as high as 41%. But on June 5...
July 5, 2017 Read More

Topics: Research

FPWR Research Team Presents Latest Grants for PWS Studies [VIDEO]

On June 23, FPWR research staff members Theresa Strong and Jessica Bohonowych presented a webinar reviewing recent initiatives funded through FPWR. The webinar is available on video below. It includes an overview of newly funded studies, new opportun...
June 28, 2017 Read More

Topics: Research

Dr. Hof Looks for Link Between Brain Neurons and Mental Health in PWS

Cognition, social behavior, and decision-making are common challenges among individuals with PWS. The brain region that controls many of these functions is called the frontal lobe. To date, there has been little work on understanding differences in t...
June 21, 2017 Read More

Topics: Research

Tony Holland, Leader In PWS Research on Obesity, Satiety, and Behavior

There has been much recent interest in the Prader-Willi syndrome (PWS) community regarding vagus nerve stimulation, a novel approach to treat PWS behavior issues, which is being led by Dr. Tony Holland and supported by FPWR. In fact, Dr. Holland, a p...
June 14, 2017 Read More

Topics: Research

Dr. Rudolph Leibel: Searching for PWS Causes at Molecular Level In Brain

Many may remember Dr. Rudolph Leibel’s presentation on stem cells and Prader-Willi Syndrome (PWS) at the FPWR Research Conference in November 2014. He also published a breakthrough discovery in the Journal of Clinical Investigation, with Lisa Burnett...
June 8, 2017 Read More

Topics: Research

Targeted Reactivation of Silenced PWS Genes as a Potential Therapy

All individuals with Prader-Willi syndrome (PWS) have at least one copy of the PWS region from their mother, but it is turned off through a normal biological process called genomic imprinting. Normally, the chromosome 15 that is inherited from the fa...
June 7, 2017 Read More

Topics: Research

Study Explores How and Why of PWS Severity, Mosaicism In PWS By UPD

Individuals with PWS present with a very broad range of severity of symptoms, which is why people often refer to PWS as a “spectrum" disorder. A new study funded by FPWR will help us understand how and why there are different degrees of PWS severity,...
May 31, 2017 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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