Foundation for Prader-Willi Blog

Preventing Mental Illness in PWS: New Study Identifies Early Signs

Behavior and mental health issues are important aspects in Prader-Willi syndrome (PWS), impacting many individuals with the syndrome and their families. In particular, one of the most challenging aspects for families to deal with can be symptoms of s...

February 28, 2018 Read More

Topics: Research

PWS Registry Data: Vomiting and Choking in PWS [INFOGRAPHIC]

The inability to vomit has previously been cited as a characteristic of Prader-Willi syndrome. While there is a reduction in vomiting as compared to neuro-typical peers, 54% of participants in the Global PWS Registry have vomited (n=304) indicating t...

February 22, 2018 Read More

Topics: Research

GDF15: A New Appetite-Regulating Pathway With PWS Therapy Potential

A series of recent discoveries have defined a new pathway for regulating appetite and satiety suggesting that a naturally occurring protein in our bodies could have the potential to be a safe and effective therapy for obesity. This protein, known as ...

February 15, 2018 Read More

Topics: Research

PWS Clinical Trial: Effects Of GLWL-01 On Hyperphagia, Phase 2

GLWL Research is now recruiting patients for its Phase 2 study to evaluate the efficacy, safety and pharmacokinetics of GLWL-01 in the treatment of patients with Prader-Willi syndrome. The study will compare the effects of GLWL-01 on hyperphagia as c...

February 6, 2018 Read More

Topics: Research

Dr. Nectow Researches Role of DRN Brain Region and Hyperphagia in PWS

Researchers throughout the world are hard at work trying to identify the biological mechanism(s) that drive hyperphagia (excessive eating) in PWS. One of these scientists is Dr. Alexander Nectow at Princeton Univeristy. Dr. Nectow's group studies a r...

February 2, 2018 Read More

Topics: Research

Intellectual Disability and PWS Researcher Godler Awarded $500,000

FPWR–funded researcher Dr. David Godler, of Murdoch Children’s Research Institute and University of Melbourne in Australia, was recently awarded nearly $500,000 AUD from the Turnbull Government’s Medical Research Future Fund (MRFF). The award funds a...

January 30, 2018 Read More

Topics: Research

PWS Registry Data: Developmental Milestones in PWS [INFOGRAPHIC]

Since the launch of the Global PWS Registry in 2015, nearly 1,400 participants have enrolled. This month, the registry is highlighting results from the developmental milestones survey. This survey is aimed at understanding the age individuals with PW...

January 22, 2018 Read More

Topics: Research

Dr. Dimitropoulos Uses Telehealth To Bring PWS Behavioral Therapies Home

There are numerous efforts in the healthcare community to increase health care accessibility, education, and support. One of these approaches is “telehealth”, the use of telecommunications methods such as computers and phones to deliver health relate...

December 28, 2017 Read More

Topics: Research

Developing a Clinical Trial Network for Prader-Willi Syndrome

The number of clinical trials for PWS continues to increase at a rapid pace. In 2017, clinicaltrials.gov listed 13 PWS clinical trials, compared with only two trials 10 years ago. With the increase in PWS clinical trials, our community is presented w...

December 21, 2017 Read More

Topics: Research

Foundation for Prader-Willi Blog | Research (23)

Categories

Preventing Mental Illness in PWS: New Study Identifies Early Signs

PWS Registry Data: Vomiting and Choking in PWS [INFOGRAPHIC]

GDF15: A New Appetite-Regulating Pathway With PWS Therapy Potential

PWS Clinical Trial: Effects Of GLWL-01 On Hyperphagia, Phase 2

Dr. Nectow Researches Role of DRN Brain Region and Hyperphagia in PWS

Intellectual Disability and PWS Researcher Godler Awarded $500,000

PWS Registry Data: Developmental Milestones in PWS [INFOGRAPHIC]

Dr. Dimitropoulos Uses Telehealth To Bring PWS Behavioral Therapies Home

Developing a Clinical Trial Network for Prader-Willi Syndrome

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