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Foundation for Prader-Willi Blog | Research (18)

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Sensory Integration Therapy for PWS [2019 CONFERENCE VIDEO]

Most people with PWS struggle with sensory processing, either seeking or avoiding sensory input. In this 54-minute video, occupational therapists Ashley Waguespack and Jessica Boudreaux explain the sensory issues common to PWS, then dive into sensory...
November 13, 2019 Read More

Topics: Research

FPWR Announces Second Round of 2019 Grant Awards for PWS Research [VIDEO]

The Foundation for Prader-Willi Research announces our second round of Research Awards in 2019 totaling $708,577. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, h...
November 7, 2019 Read More

Topics: Research

2019 PWS Clinical Trials Panel [VIDEO]

The PWS Clinical Trials Panel presentation in the video below took place at FPWR’s 2019 Annual Research Symposium and Family Conference. The 90-minute session opens with a quick overview of the drug development process and is followed by presentation...
October 25, 2019 Read More

Topics: Research

DCCR Clinical Trial Should Continue, Says Data Safety Monitoring Board

Based on the review of data from more than 50% of patients enrolled, the Data Safety Monitoring Board has recommended continuing a phase III clinical trial of DCCR for PWS. The trial, called DESTINY PWS, is a randomized, double-blind, placebo-control...
October 18, 2019 Read More

Topics: Research

Stages of PWS Drug Development Overview [VIDEO]

Drug development is a long and costly process that can take up to 15 years and cost up to one billion dollars! In this 7-minute video, Dr. Theresa Strong discusses the stages of PWS Drug Development. Don't have time for the full presentation? We've c...
October 16, 2019 Read More

Topics: Research

Phase 2 Study Results Published: Diazoxide Choline Controlled-Release

In 2015 FPWR co-funded a phase 2 study to investigate diazoxide choline controlled-release in patients with PWS. Results from the study were recently published in PLoS ONE and are summarized below.
October 1, 2019 Read More

Topics: Research

Evaluating Exercise Programs for People with PWS: New Study

The Foundation for Prader-Willi Research and the Prader-Willi Research Foundation Australia are jointly supporting a new research project, led by Dr. Nora Shields of La Trobe University, evaluating the effects of exercise training in individuals with...
September 18, 2019 Read More

Topics: News, Research

Psychologist Lauren Roth on Behavior, Mental Health and PWS [PODCAST]

July 23, 2019 Read More

Topics: Research

Why I Believe We Are Entering a Golden Age of Medicine

In 1869, scientists isolated DNA for the first time. In 1953, they identified its double-helix structure. In the late 1970’s bone marrow transplantation was introduced, and entire immune systems (genes) were replaced as means to cure some blood cance...
June 27, 2019 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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