Foundation for Prader-Willi Blog

PWS Registry Data: Thyroid Issues in PWS [INFOGRAPHIC]

When it comes to hormone imbalances in Prader-Willi syndrome (PWS), growth hormone deficiency and growth hormone therapy are at the forefront of the conversation. However, the levels of several other hormones are also more frequently different in PWS...

March 22, 2021 Read More

Topics: Research

Social Skills and Cognition Challenges in PWS [2020 CONFERENCE VIDEO]

In this 75-minute presentation, experts Elizabeth Roof, Anastasia Dimitropoulos, Louise Gallagher, and Lauren Schwartz-Roth discuss what we've learned about social skills and Prader-Willi syndrome. In particular, they discuss what we can do to addres...

March 18, 2021 Read More

Topics: Research

Neuren Pharmaceuticals Adds Prader-Willi Syndrome to Development Pipeline

Neuren Pharmaceuticals has added Prader-Willi syndrome to their development pipeline for compound NNZ-2591 following a successful study in a pre-clinical model. The study showed compelling benefits for treating key symptoms of PWS.

March 17, 2021 Read More

Topics: Research

Radius Health Adds Synthetic CBD to Development Pipeline for PWS

Radius Health has acquired a cannabidiol (CBD) compound and is preparing a PWS clinical trial using it. Radius Health believes that the drug has potential to reduce hyperphagia and improve anxiety symptoms in PWS. The news is of special interest to t...

March 9, 2021 Read More

Topics: Research

Moving Barriers for Improved Behavior in PWS [2020 CONFERENCE VIDEO]

In this 60‑minute video, Patrice Carroll, director of PWS services at Latham Centers in Massachusetts, describes what typical PWS behavior is, ways it can be improved, and how to remove barriers to allow children and adults with PWS to thrive and ach...

February 24, 2021 Read More

Topics: Research

Navigating Your Insurance Coverage with PWS [2020 CONFERENCE VIDEO]

Brian Kalasek is both a father of a young son with PWS and VP of Special Risk for Mutual of Omaha insurance company. In this 76-minute presentation, he shares successful strategies for maximizing health insurance benefits and estate planning — inform...

February 22, 2021 Read More

Topics: Research

Deconstructing Anxiety in PWS [2020 CONFERENCE VIDEO]

In this 88‑minute video, Dr. Deepan Singh discusses what anxiety looks like in PWS, what leads to it, and how can it be treated. Learn from this PWS mental health presentation, which concludes with Dr. Singh answering questions from the audience at t...

February 10, 2021 Read More

Topics: Research

Paving the Way for Treatments for PWS

In the last 5 years, more than 15 human clinical trials have taken place evaluating possible treatments for PWS. FPWR has been closely involved in each and every one: contributing the patient perspective to aspects of study design, funding or helping...

January 26, 2021 Read More

Topics: Research

IMPACT 2020

In 2020, more than 9,500 donors supported PWS research and our mission to eliminate the challenges of PWS. We would like to thank all of our supporters: everything we do is made possible by you! Here are just a few of our accomplishments from this pa...

January 19, 2021 Read More

Topics: Research

Foundation for Prader-Willi Blog | Research (14)

Categories

PWS Registry Data: Thyroid Issues in PWS [INFOGRAPHIC]

Social Skills and Cognition Challenges in PWS [2020 CONFERENCE VIDEO]

Neuren Pharmaceuticals Adds Prader-Willi Syndrome to Development Pipeline

Radius Health Adds Synthetic CBD to Development Pipeline for PWS

Moving Barriers for Improved Behavior in PWS [2020 CONFERENCE VIDEO]

Navigating Your Insurance Coverage with PWS [2020 CONFERENCE VIDEO]

Deconstructing Anxiety in PWS [2020 CONFERENCE VIDEO]

Paving the Way for Treatments for PWS

IMPACT 2020

About FPWR

Main Menu

Our Mission

Contact Us