New call-to-action
New call-to-action
New call-to-action

Foundation for Prader-Willi Blog | Research (14)

Categories

FPWR Announces Second Round of 2020 Grant Awards for PWS Research

The Foundation for Prader-Willi Research announces our second round of Research Awards in 2020 totaling $666,566. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, h...
December 29, 2020 Read More

Topics: Research

Return of Results: Destiny-PWS by Soleno Therapeutics [2020 CONFERENCE VIDEO]

In this hour-long video, the CEO of Soleno Therapeutics and researcher Dr. Jennifer Miller go into detail on the design and results of the DCCR phase 3 clinical trial. The session also covers next steps for making the drug available to treat PWS, dis...
December 28, 2020 Read More

Topics: Research

2020 PWS Research Publications

Despite the enormous challenges of 2020, PWS scientists and clinicians persevered and made tremendous headway in understanding PWS, advancing new treatments, and improving care. New insights into the biology of PWS have identified new targets for dru...
December 23, 2020 Read More

Topics: Research

Return of Results: CARE-PWS by Levo Therapeutics [2020 CONFERENCE VIDEO]

In this 36-minute Return of Results session, David Ryman of Levo Therapeutics provides insights into the Phase 3 clinical trial of carbetocin, including next steps for making the drug available to treat hyperphagia and anxiety behaviors in PWS. This ...
December 15, 2020 Read More

Topics: Research

Study Reveals Features of Schaaf-Yang Syndrome Adult Phenotype

A new study sheds light on the clinical characteristics of Schaaf-Yang Syndrome in adults. In addition to other important findings, the study suggests there is more overlap between PWS and Schaaf-Yang Syndrome than previously understood, and confirms...
December 14, 2020 Read More

Topics: Research

What's Happening in PWS Research [2020 CONFERENCE VIDEO]

Join Dr. Theresa Strong and the FPWR Research Team to learn more about what is happening in PWS research. In this 68-minute video, the FPWR Research Team members summarize highlights, recent findings and the latest on PWS research and available resou...
November 25, 2020 Read More

Topics: Research

PWS Registry Data: Impact of COVID-19 on PWS Families [INFOGRAPHICS]

Originally published in August 2020, this blog has been updated with significant new data. The Global PWS Registry launched a survey this summer to capture the impact of COVID-19 on PWS families, and how our community is navigating this unprecedented...
November 23, 2020 Read More

Topics: Research

PWS Clinical Trials Panel [2020 CONFERENCE VIDEO]

PWS clinical trials are taking place around the world to help us understand Prader-Willi syndrome and investigate new treatments. In this 60-minute video, Dr. Strong summarizes the drug development pathway, followed by trial representatives describin...
November 18, 2020 Read More

Topics: Research

November 15th Is International 15q Day

Together, the Foundation for Prader-Willi Research, Angelman Syndrome Foundation and Dup15q Alliance are raising awareness of the similarities between Angelman, Dup15q, and Prader-Willi syndromes.
October 22, 2020 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

4star120x60

NORD_MembershipLogo_Platinum_2021

excellence-in-giving-logo

Main Menu

Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Contact Us

Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

FPWR
440 N Barranca Ave #3620
Covina, CA 91723

Copyright © 2020. All Rights Reserved. Terms of Use. Privacy Policy. Copyright Infringement Policy. Disclosure Statement.