Foundation for Prader-Willi Blog

Meet Team FPWR: A Dynamic Force Running the NYC Marathon for Research

Meet Team FPWR, a powerhouse group of eleven incredible individuals lacing up their sneakers to conquer the New York City Marathon on November 3, 2024! Each runner brings a unique story and a shared passion for supporting Prader-Willi syndrome resear...

September 12, 2024 Read More

Topics: Stories of Hope, PWS People

Advancing Prader-Willi Syndrome Care With the New PWS Profile Tool

PWS impacts many aspects of our children’s lives. The hallmark struggle for those affected by PWS is hyperphagia, or excessive appetite. But beyond hyperphagia, individuals with PWS are susceptible to other behavioral and emotional problems that affe...

May 13, 2024 Read More

Topics: News, Resource Development, Research, PWS People

Learning from Every Patient: The PWS-CLIC Starts a Shared Database

The PWS-Clinical Investigation Collaborative (PWS-CLIC) is a network of PWS clinical experts, formally established in 2021. The work of the PWS-CLIC is supported by FPWR. This network has expanded over the past two years and now includes 25 clinical ...

March 5, 2024 Read More

Topics: Research, PWS People

Partnership with CombinedBrain Will Establish Biorepository for PWS & SYS

The Foundation for Prader-Willi Research has partnered with COMBINEDBrain to establish a biorepository of blood and urine samples that will help speed treatments for people with PWS and other neurodevelopmental disorders. Biorepositories play a cruci...

July 19, 2023 Read More

Topics: PWS People, Volunteer, SYS

Foundation for Prader-Willi Blog | PWS People

Categories

Meet Team FPWR: A Dynamic Force Running the NYC Marathon for Research

Advancing Prader-Willi Syndrome Care With the New PWS Profile Tool

Learning from Every Patient: The PWS-CLIC Starts a Shared Database

Partnership with CombinedBrain Will Establish Biorepository for PWS & SYS

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