Donate
    Join Us

    Latest News

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Filter
    Select Category
    Research
    Stories of Hope
    News
    Parents
    Family Conference
    Global PWS Registry
    Clinical Trials
    Schaaf-Yang Syndrome
    Treatments
    Behavior
    Sleep
    Advocacy
    Resource Development
    Clinical Trials Opportunities
    hopefull
    Mental Health
    Clinical Issues
    Hunger Satiety
    Learning
    Research Blog
    Children 0-3
    Children 12-18
    Children 3-6
    Endocrinology/Growth Hormone
    Genetic Therapy
    Hyperphagia
    Scoliosis
    Therapeutic Development
    Aging
    Blood Clots
    Children 6-12
    Executive Function
    Genetics and Imprinting
    Obesity and Energy Balance
    PWS Research
    Partners
    Trial Results
    VYKAT
    Video Gallery
    Volunteer
    cognition
    interventions
    one small step
    skin picking

    News (2)
    Aardvark Therapeutics Announces Voluntary Pause of Hero Clinical Trial
    SAN DIEGO, Feb. 27, 2026 (GLOBE NEWSWIRE) -- Aardvark Therapeutics, Inc. (Aardvark) (Nasdaq: AARD), a clinical-stage biopharmaceutical company focused on developing novel, small-molecule therapeutics to activate innate homeostatic pathways for the treatment of metabolic diseases, today announced it is voluntarily
    Global Prader-Willi Syndrome Registry logo over a blue background with data charts.
    The Global PWS Registry: Turning Lived Experience Into Better Care
    Families living with Prader-Willi syndrome are changing how PWS is understood, studied, and treated. In a recent episode of the PWS United podcast, members of FPWR’s research team shared how ten years of family participation in the Global PWS Registry
    Blog Cover Graphic
    Pivotal Study Results of  VYKAT™ XR Published
    Soleno Therapeutics has published results from its pivotal Phase 3 clinical study of VYKAT™ XR (diazoxide choline extended-release tablets, DCCR) in The Journal of Clinical Endocrinology and Metabolism, a peer-reviewed journal for endocrine and metabolic research. The publication reports findings
    Your 2025 Impact: FPWR Fundraising Wrapped
    Your 2025 Impact: FPWR Fundraising Wrapped
    Every breakthrough, every milestone, and every step forward in 2025 had one thing in common: our community. Because supporters like you showed up. You shared your story. You asked others to stand with you. And it mattered. Here are just
    Global PWS Registry 2.0 Launches with New VYKAT Module
    The Global PWS Registry is powered by the dedication of patients and families who share their PWS experiences. Each piece of data collected helps unlock insights that fuel scientific discoveries and treatment breakthroughs. Registry data has already powered several important
    Reflecting on 2025 - Progress and Hope for the PWS Community
    Reflecting on 2025: A Year of Breakthroughs, Milestones, and Momentum
    As we wrap up 2025, we’re celebrating a year shaped by real progress… scientific breakthroughs, new treatment pathways, and meaningful improvements in care for people with Prader-Willi syndrome (PWS) and Schaaf-Yang syndrome (SYS). Every step forward this year was fueled
    Caregiver Perspectives: Insights on the COMPASS-PWS Trial
    Background In response to Acadia Pharmaceuticals’ announcement that the COMPASS-PWS Phase 3 trial of intranasal carbetocin did not meet its primary or secondary endpoints and would not advance further, the Foundation for Prader-Willi Research (FPWR) convened a patient forum to
    Previous 1 2 3 4 5

    Subscribe to hope.

    If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

    Subscribe to FPWR News Updates

    Heading 1

    with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

    Evan and Dr. Fallah