Foundation for Prader-Willi Blog (9)

2023 Harvesting Hope Distance Challenge: Make a Real Difference

The Harvesting Hope Distance Challenge is back, and it's your chance to join a heartwarming community, get moving, and make a real difference. Whether you're a seasoned walker, a jogging enthusiast, or someone who just loves the idea of taking positi...

October 3, 2023 Read More

Topics: News

FPWR Partners with PWSA | USA to Provide BOSS Social Skills Groups for Teens and Adults with PWS

PWSA | USA (Prader-Willi Syndrome Association | USA) and FPWR (Foundation for Prader-Willi Research) are thrilled to announce a groundbreaking collaboration to address the social challenges faced by individuals with Prader-Willi syndrome (PWS). FPWR ...

September 27, 2023 Read More

Soleno Therapeutics Announces Positive Statistically Significant Top-line Results from Randomized Withdrawal Period of Study C602 of DCCR for Prader-Willi Syndrome

We are excited to share the news that Soleno has announced positive, statistically significant top-line results from the randomized withdrawal period of study c602 of DCCR for Prader-Willi Syndrome. In the study, patients taking DCCR showed a highly ...

September 26, 2023 Read More

Progressive Resistance Training in Young People With PWS: Protocol for a Randomized Trial (PRESTO)

It is well known that individuals with Prader-Willi syndrome (PWS) display muscle weakness, hypotonia, and decreased lean muscle mass. Those with PWS have a 25–40% decrease in muscle mass compared to non-affected individuals, and muscle strength is a...

September 13, 2023 Read More

Topics: Research

Life-Changing Connections: Families Share Why They Love the FPWR Conference

Attending a conference means being around people who get it—they understand the journey you have been on with your child, personally, and with the world. It’s like seeing your family when you attend the FPWR Family Conference. Everyone, whether a new...

August 22, 2023 Read More

Topics: News

Growing Up Alongside Prader-Willi Syndrome

Being a mom and a psychologist, I have often wondered about the impact of growing up with a person with Prader-Willi Syndrome (PWS) on siblings. There are research studies that indicate that growing up with a sibling with a developmental disability c...

August 15, 2023 Read More

Artist of the Year 2023 Winners

A special blog contribution from our 2023 FPWR Art Auction Participants! Our 2023 Artist of the Year competition was a great success, raising critical funds for PWS research! We extend our heartfelt gratitude to all our extraordinary artists who part...

August 8, 2023 Read More

Topics: Stories of Hope

Aardvark Announces Rare Disease Designation and Expands Ongoing Phase 2 Trial

Aardvark Therapeutics, a clinical stage biopharmaceutical company, has reported receipt of a Rare Pediatric Disease Designation in Prader-Willi Syndrome (PWS) from the FDA for its lead program ARD-101.

August 3, 2023 Read More

Generous Donor Ignites the $25,000 Challenge

Recently, a matching donor came forward, igniting the $25,000 Challenge. Today, we want to introduce you to our generous matcher: Maria.

August 3, 2023 Read More

Topics: Advocacy

FPWR Blog

Categories

2023 Harvesting Hope Distance Challenge: Make a Real Difference

FPWR Partners with PWSA | USA to Provide BOSS Social Skills Groups for Teens and Adults with PWS

Soleno Therapeutics Announces Positive Statistically Significant Top-line Results from Randomized Withdrawal Period of Study C602 of DCCR for Prader-Willi Syndrome

Progressive Resistance Training in Young People With PWS: Protocol for a Randomized Trial (PRESTO)

Life-Changing Connections: Families Share Why They Love the FPWR Conference

Growing Up Alongside Prader-Willi Syndrome

Artist of the Year 2023 Winners

Aardvark Announces Rare Disease Designation and Expands Ongoing Phase 2 Trial

Generous Donor Ignites the $25,000 Challenge

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