Latest News

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

2025 Winners
Artist of the Year 2025 Winners: Celebrating Creativity and Hope
A special blog contribution from our 2025 FPWR Art Auction Participants. Our 2025 Artist of the Year competition was a tremendous success, raising more than $25,000 to advance Prader-Willi and Schaaf-Yang syndrome research! We are deeply grateful to every extraordinary
PWS Clinical Trials: 2025 Conference Recap and How Families Can Help
Clinical trials are the bridge between discovery and real-world treatments, and families in the Prader-Willi syndrome (PWS) community play a critical role in making them possible. In this 63-minute presentation, Dr. Theresa Strong (FPWR Director of Research Programs) reviews clinical
5 Treatments to Improve Quality of Life for People with PWS
FPWR is dedicated to advancing research and accelerating the development of safe and effective treatments for people with Prader-Willi syndrome (PWS). While significant unmet needs remain, there are several therapies—both established and emerging—that can positively impact health and quality of
Running for Hope: Meet Team FPWR 2025
Running for Hope: Meet Team FPWR 2025
They’re parents, siblings, friends, and advocates, and this November, they’ll take on 26.2 miles together for a cause close to their hearts. Meet Team FPWR, a passionate team of athletes raising awareness and accelerating research for Prader-Willi syndrome. Each has
Soleno Therapeutics Announces New Investment in PWS Research
Soleno Therapeutics is committing up to $5 million to accelerate progress toward a cure for Prader-Willi syndrome by funding groundbreaking genetic research. This new initiative builds on years of groundwork made possible by the PWS community through FPWR-funded research. With
Two Exciting Research Opportunities for Families of Children with PWS
Families of children with Prader-Willi syndrome (PWS), your participation has the power to make a real difference—not only for your own child, but for the PWS community at large. Below are two research studies currently recruiting through the Neurodevelopment Research
HARVESTING HOPE 2025
Harvesting Hope 2025: Walk, Run, or Shake Your Tailfeather
Ready to put purpose in your steps? The Harvesting Hope Distance Challenge is back starting October 16! Whether you walk, run, or waddle, every step funds critical research for Prader-Willi and Schaaf-Yang syndromes. And the best part? Thanks to a

Subscribe to hope.

If you're looking for the latest information on Prader-Willi syndrome, you’ve come to the right place. FPWR Updates is your source for up-to-date information.

Heading 1

with a request body that specifies how to map the columns of your import file to the associated CRM properties in HubSpot.... In the request JSON, define the import file details, including mapping the spreadsheet's columns to HubSpot data. Your request JSON should include the following fields:... entry for each column.

Evan and Dr. Fallah