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FPWR Blog

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Modafinil improves daytime sleepiness in PWS

“Excessive daytime sleepiness” (EDS) is one of those symptoms of PWS that tends not to get too much attention – although very common, it just doesn’t seem that serious. However, EDS can profoundly undermine success in older children and adults with P...
June 15, 2011 Read More

Topics: Research

PWS Clinical Guidelines to Download and Share

Dr. Shawn McCandless and the Committee on Genetics at the American Academy of Pediatrics have just published "Clinical Report: Health Supervision for Children with Prader-Willi Syndrome" in the Journal of Pediatrics. The article is available for down...
January 2, 2011 Read More

Topics: Research

PWS iPS cells are here!

Having just recently announced FPWR’s projects funded in 2010 [see full list here], it’s very exciting to already be able to announce a major advance as a result of that funding. Dr. Marc Lalande and colleagues at the University of Connecticut Stem C...
September 27, 2010 Read More

Topics: Research

A new drug to build muscle?

Individuals with PWS have motor difficulties throughout life, with low muscle tone and decreased muscle mass. Growth hormone therapy is helpful in increasing muscle mass, but it does not completely normalize body composition.
August 10, 2010 Read More

Topics: Research

A Preliminary Analysis of the Phenomenology of Skin-Picking in Youth with PWS

Below is a special guest blog from Jessica Morgan, a graduate student working with Dr. Eric Storch at the University of South Florida. Their group has an interest in understanding skin picking (and other obsessive/compulsive behaviors) in PWS so that...
April 28, 2010 Read More

Topics: Research

What's for dinner? Mandometer anyone?

So, here's a different approach. A new study looks at the use of a computerized device in helping to modify eating behavior in typically developing obese adolescents.
March 30, 2010 Read More

Topics: Research

Long-Term Safety and Benefits of Growth Hormone Therapy for PWS

Several new reports on growth hormone (GH) therapy support the benefits of GH use in PWS, while continuing the trend of a reassuring safety profile.
January 28, 2010 Read More

Topics: Research

Seizure Disorder in Prader-Willi Syndrome

Although it's rarely mentioned in clinical descriptions of PWS, anyone who hangs around families with PWS knows that seizures seem to occur much more frequently in those with PWS than typical individuals. Even in cases where a seizure disorder is nev...
July 2, 2009 Read More

Topics: Research

Linking Learning with Neurodevelopmental Functioning - Final Report

This project was funded by the Foundation for Prader Willi Research in 2006 and conducted by Drs. Gregory Olley and Anne Wheeler and their team at the University of North Carolina, Chapel Hill (UNC), Center for Development and Learning. Dr. Wheeler i...
May 6, 2009 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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Covina, CA 91723

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