Foundation for Prader-Willi Blog (69)

The gut-brain connection: bacteria naturally carried in the gut may influence brain chemistry and behavior

Those with PWS often battle a variety of gastro-intestinal (GI) issues. Beyond general GI function and quality of life, there is a growing field of research exploring how GI composition and health is intricately connected to other systems in the body...

March 27, 2014 Read More

Topics: Research

An Improved Model of PWS: Generous Donation Allows Development of an Improved Rat Model

While the genetic engineering of mouse models has allowed scientists to successfully understand and develop new therapies for many genetic diseases, the PWS mouse models generated so far have not fully mimicked the complexity of human PWS, slowing th...

February 15, 2014 Read More

Topics: Research

Our Daughter Constantly Surprises Us and Exceeds Our Expectations

In the summer of 1999, Mark Roth and Lauren Schwartz-Roth of Seattle, WA were expecting their first child with great anticipation. However, during the pregnancy, Lauren noticed decreased fetal movement, and when the doctor confirmed that the baby was...

February 14, 2014 Read More

Topics: Stories of Hope

Clinical Trials 2014 What You Need to Know - Webinar Summary

Over 450 excited parents and community members registered for the Clinical Trials Webinar January 19th. Theresa Strong and Jennifer Miller outlined an overview of the drug development process, discussed what you can expect when you participate in a c...

February 14, 2014 Read More

Topics: Research

Zafgen's Research into Weight Loss Drug, Beloranib, Looks Promising

Zafgen announced in November results of a completed Phase 2 study of their obesity drug, Beloranib, in severely obese patients (non-pws). Findings from the study demonstrated significant weight loss in 147 obese individuals over a 12 weeks of treatme...

February 13, 2014 Read More

Topics: Research

Long Term GH Therapy Improved Body Composition

Recent research out of Italy, reported in the Journal of Clinical Endocrinology and Metabolism, highlights the potential benefits of long-term growth hormone (GH) therapy in adults with PWS. The study, involving 15 obese adults with PWS treated with ...

February 12, 2014 Read More

Topics: Research

We Chose to Believe in a Bright Future for Our Son

“Happy 30th Birthday to you, Keegan Johnson, and, by the way, your son has Prader-Willi syndrome!” Although the news wasn’t delivered in song, that was what was presented to Keegan and Tanya Johnson on the day they planned to celebrate Keegan’s first...

February 12, 2014 Read More

Topics: Stories of Hope

Clinical Trials In Our Community: Oxtyocin, Here We Come!

By Emma Roth and Lauren Schwartz-Roth, FPWR Board Member Lauren Roth and her daughter, Emma, share their experience of participating in the Oxytocin Clinical Trial at Vanderbilt University. Join this duo through their journey and learn more about the...

February 11, 2014 Read More

Topics: Research

The Top Ten Reasons to Take One SMALL Step in 2014 !

Recently we asked members of our One SMALL Step facebook page to share their reason for hosting a One SMALL Step event. Here are their top ten reasons. Hosting an event is like teaching a school lesson....the one that often learns the most is the tea...

February 10, 2014 Read More

Topics: Research

FPWR Blog

Categories

The gut-brain connection: bacteria naturally carried in the gut may influence brain chemistry and behavior

An Improved Model of PWS: Generous Donation Allows Development of an Improved Rat Model

Our Daughter Constantly Surprises Us and Exceeds Our Expectations

Clinical Trials 2014 What You Need to Know - Webinar Summary

Zafgen's Research into Weight Loss Drug, Beloranib, Looks Promising

Long Term GH Therapy Improved Body Composition

We Chose to Believe in a Bright Future for Our Son

Clinical Trials In Our Community: Oxtyocin, Here We Come!

The Top Ten Reasons to Take One SMALL Step in 2014 !

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