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FPWR Blog

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Thank you Wendy Kosmak and LinkedIn for supporting PWS Research!

Each year LinkedIn promotes employee philanthropy through a two-week fundraising challenge at it’s Chicago office. Employees are encouraged to join one of ten fundraising teams supporting a charity of the team’s choosing. The team that raises the mos...
July 23, 2014 Read More

Topics: Research

Webinar: Fundraising Outside the Walk

You are invited to attend a free webinar: Fundraising Outside the Walk. Have you considered hosting a fundraising event to benefit PWS research? Join four veteran event hosts as they share their tips for hosting events "Outside the Walk":
July 16, 2014 Read More

Topics: Research

PWS at the FDA

On Tuesday, June 17, key leaders and scientific staff members at the FDA took time out of their busy schedules to learn about the serious challenges of PWS, to hear about our loved ones’ unmet medical needs, and to discuss ways to work with the PWS c...
June 22, 2014 Read More

Topics: Research

PWS iPS cells are helping researchers make breakthroughs

One of the exciting breakthroughs in PWS research in recent years has been the development of induced pluripotent stem cells or “iPSCs”. Although there is tremendous excitement among the scientific community about iPSCs, many parents, patients, and a...
May 29, 2014 Read More

Topics: Research

PWS in the News: Researchers studying rare genetic disorder

Dr. Marc Lalande is leading a team of researchers trying to unlock the key to improve the quality of life for children born with Prader-Willi Syndrome by growing stem cells from blood and skin samples in an effort to come up with breakthrough therapy...
May 16, 2014 Read More

Topics: Research

2014 Puzzle Project: Small Molecule Screening for Potential PWS Therapeutics

We all wish, hope and work for a ‘cure’ for PWS - new treatments for the hunger, a new therapy to improve behavior, interventions to make our child’s life healthier, happier and more independent. After years with very few new drugs and interventions ...
May 15, 2014 Read More

Topics: Research

Young Investigators Internship Program: Funding for 2014 Complete!

Just a few short weeks ago, we shared with you the amazing story of Ariana Garagozzo, an aspiring PWS researcher and sister to a young man with PWS. We are pleased to announce that funding for the 2014 Young Investigators Internship Program is comple...
May 8, 2014 Read More

Topics: Research

Optogenetics: a new research tool in understanding the neurobiology underlying PWS behaviors

It’s likely that improper development and/or function of neurons throughout different regions of the brain contributes to many of the characteristics of PWS, including hyperphagia, anxiety, OCD behaviors, sleep disturbances, and temper outbursts. How...
April 25, 2014 Read More

Topics: Research

Potential for a future prenatal therapy for autism

A recent publication in Science raises a number of interesting questions regarding the potential for prenatal and perinatal (newborn) therapies in the prevention and treatment of autism spectrum disorder (ASD). This type of treatment would be a decad...
March 27, 2014 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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440 N Barranca Ave #3620
Covina, CA 91723

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