Foundation for Prader-Willi Blog (67)

2014 Research Conference Wrap Up

"I am blown away by [the FPWR Research Conference]. It has been an honor and a privilege to come and present. FPWR is an amazing foundation. The families I met are just the most wonderful people.The spirit amongst you, the motivation, and the energy ...

November 24, 2014 Read More

Topics: Research

New York City Gala to Honor Extraordinary Contributions to Prader Willi Syndrome

The Foundation for Prader-Willi Research will honor the contributions of New York philanthropists Irina and Leon Shaulov. On November 13, 2014 the Foundation for Prader-Willi Research (FPWR) will hold its 2nd annual New York City Live Life FULL Gala ...

November 6, 2014 Read More

Topics: Research

[VIDEO] Olivia Viroslav: 'Every One of Your Children Has a Good Future'

Olivia Viroslav graduated from Alamo Heights High School in San Antonio, TX in the top third of her class with an A average for all 4 years. She was also on the A/B Honor Roll every semester. While in high school, she was very involved with her youth...

October 9, 2014 Read More

Topics: Stories of Hope

Calling all Federal Military, Postal and Civilian Workers: Its CFC Pledge Time Again!

Its CFC Pledge Time Again! The Combined Federal Campaign (CFC) is the world's largest and most successful annual workplace charity campaign. Each year, Federal employees raise millions of dollars on behalf of charitable organizations across the count...

September 19, 2014 Read More

Topics: Research

Cartwheels for a Cure

FRIENDS OF FPWR SPOTLIGHT We've flipped for this fundraising idea! David and Andrea Piercey of Massachusetts took a little inspiration from the ALS ice bucket challenge that has taken social media by storm...and literally flipped it! Just last month,...

September 18, 2014 Read More

Topics: Research

PWS Awareness Segment on ABC's 20/20

On Friday, August 15, 2014, an estimated 3.8 million viewers tuned in to watch a 20/20 special report titled "My Strange Affliction" on ABC. The segment featured, among others, a young woman named Hannah Wilkinson, and her mother Tonya, and shared dr...

August 19, 2014 Read More

Topics: Research

FPWR Proudly Awards $1.2 Million to Promising Science in Prader-Willi Syndrome (PWS)

Los Angeles, CA, August 7, 2014– The Foundation for Prader-Willi Research (FPWR), a nonprofit organization dedicated to supporting research to advance the understanding and treatment of Prader-Willi syndrome (PWS), announced today the awarding of $1....

August 11, 2014 Read More

Topics: Research

Sleep Apnea In Infants and Children with PWS: Is a Sleep Study On Your "To-Do" List?

In a study from The Hospital for Sick Children, the authors recommend that all infants with PWS be screened for sleep disordered breathing (SDB) and receive oxygen treatment as needed. SDB is an area of great concern for the PWS community. SDB includ...

July 29, 2014 Read More

Topics: Research

FPWR Announces Request For Applications

The Foundation for Prader-Willi Research (FPWR) announces the availability of funds to support innovative research relevant to PWS. FPWR is particularly interested in supporting projects that will lead to new interventions to alleviate the symptoms a...

July 23, 2014 Read More

Topics: Research

FPWR Blog

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2014 Research Conference Wrap Up

New York City Gala to Honor Extraordinary Contributions to Prader Willi Syndrome

[VIDEO] Olivia Viroslav: 'Every One of Your Children Has a Good Future'

Calling all Federal Military, Postal and Civilian Workers: Its CFC Pledge Time Again!

Cartwheels for a Cure

PWS Awareness Segment on ABC's 20/20

FPWR Proudly Awards $1.2 Million to Promising Science in Prader-Willi Syndrome (PWS)

Sleep Apnea In Infants and Children with PWS: Is a Sleep Study On Your "To-Do" List?

FPWR Announces Request For Applications

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