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FPWR Blog

April 2015 FPWR updates, events & PWS news.

The Global PWS Registry launch is just around the corner! Watch your inbox and our Facebook page for announcements and updates. Hint: a fun challenge is coming your way!

Topics: Research

New insights into behavior and learning in PWS

Two recent papers address the very important areas of behavior and learning in PWS, and may be helpful in teaching people with PWS how to better cope and learn as they navigate through the world.

Topics: Research

Clinical Care Perspectives on PWS

The Center for Prader-Willi Syndrome at The Children’s Institute of Pittsburgh is hosting a Prader-Willi clinical conference on May 29, 2015.

Topics: Research

Exciting News and Updates: March 2015

PWS Mental Health Workshop Draws Top Clinicians and Scientists from Around the World On March 1-3, 2015, approximately 45 top mental health professionals from around the world gathered in Bethesda, Maryland to discuss behavior and mental health in Pr...

Topics: Research

Report from the Prader-Willi Syndrome Mental Health Research Strategy Workshop

On March 1-3, 2015, approximately 45 top mental health professionals from around the world gathered in Bethesda, Maryland to discuss behavior and mental health in Prader-Willi syndrome (PWS).

Topics: Research

Brain imaging shows structural differences between the PWS vs. non-PWS brain

It is well known that individuals with PWS often exhibit developmental delays and impaired cognition compare to typically developing peers. There is also evidence that those with PWS are at higher risk than the general population for mental health pr...

Topics: Research

Latest FPWR News - February 2015

Dr. Sebastien Bouret at Children’s Hospital Los Angeles is interested in how levels of hormones that regulate appetite impact brain function. Specifically, his group is exploring how levels of these hormones early in life influence brain development ...

Topics: Research

Abnormal ghrelin early in life programs the brain for obesity

Dr. Sebastien Bouret at Children’s Hospital Los Angeles is interested in how levels of hormones that regulate appetite impact brain function. Specifically, his group is exploring how levels of these hormones early in life influence brain development ...

Topics: Research

2014 Year in Review

In 2014 FPWR proudly supported 20 projects and initiatives! Thanks to the keen guidance of our scientific advisory board and volunteer review panel, this portfolio of projects represent the best ideas in the world and will advance the science of PWS ...

Topics: Research