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FPWR Blog

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Mental Health in PWS – Mindfulness, Exercise May Help

Staying mentally well can be a challenge for all of us, but is particularly difficult for those with PWS. While medications can be an important part of maintaining good mental health in PWS, we're always on the lookout for approaches and intervention...
July 11, 2016 Read More

Topics: Research

First Steps After PWS Diagnosis

When you first receive your child’s Prader-Willi syndrome (PWS) diagnosis, it can feel as if his or her whole life is flashing in front of you, with an infinite list of concerns. Based on the experiences of parents involved in FPWR, here's a suggeste...
July 5, 2016 Read More

New CRISPR Gene Editing Options Focus on RNA

If you pay attention to science 'buzz', you've probably heard of CRISPR technology. This technology allows scientists to precisely modify DNA sequences. First adapted for genome editing in 2013, use of CRISPR systems has exploded in research labs, al...
June 27, 2016 Read More

Topics: Research

Telehealth: PWS Healthcare Through Your Computer

Telehealth, or the "delivery of health-related services and information via telecommunications" such as through a computer is a growing trend in health care. A recent report from a group at Michigan State University shows how their online program is ...
June 22, 2016 Read More

Topics: Research

Ghrelin Research Explores Switch from Failure to Thrive to Obesity

Dr. Maithé Tauber and colleagues recently reported interesting results on the hunger hormone ghrelin. They show that the ratio of active (AG) to inactive (UAG) forms of ghrelin changes over time. They hypothesize that this change may play a role in t...
June 20, 2016 Read More

Topics: Research

A Father's Biggest Dream: A Fulfilling, Independent Life for His Son

Our FPWR community has no shortage of amazing fathers. We honor your selfless commitment to supporting your children and helping to insure a brighter future for them. We asked Josh Gilliam, dad to Jackson, to share his FPWR story in honor of all dads...
June 19, 2016 Read More

Topics: Stories of Hope

Role of Magel2 in Feeding and Energy Is Focus of FPWR-Funded Study

A new study on the role of Magel2 in feeding and energy helps define the underlying biology of ‘the problem’ in appetite and energy balance brain circuits in PWS. It also suggests that therapeutic approaches to strengthen the anorexigenic circuitry a...
June 17, 2016 Read More

Topics: Research

Team FPWR Runs the TCS New York City Marathon

For the first time ever, the Foundation for Prader-Willi Research will be represented November 6th on the streets of New York at the largest marathon in the world – The TCS New York City Marathon! “We are excited to partner with the TCS New York City...
June 15, 2016 Read More

Topics: News

How's mom doing?

It’s not news to moms of children with PWS that ours is not an easy road. Our kids face medical problems, challenges in their schools, and often have behavioral issues that can be exhausting. Then there are the doctors’ appointments, therapies, socia...
May 26, 2016 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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440 N Barranca Ave #3620
Covina, CA 91723

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