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FPWR Blog

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It's Not Normal, It's Better: A Letter to Prader-Willi Siblings

A special contribution by guest blogger Courtney Smith A letter to Prader-Willi siblings: Recently, a woman asked if I would be willing to speak with her teenage daughter who was struggling having a brother with Prader-Willi Syndrome. Of course I pro...
November 23, 2016 Read More

Topics: Stories of Hope

Improving Social Functioning in PWS [VIDEO]

“People with PWS have a real need to actually connect with others and have relationships." This was one of the many valuable insights shared by Elizabeth Roof, Senior Research Specialist at Vanderbilt University, and other panelists addressing social...
November 21, 2016 Read More

Topics: Research

Parents of Children With Special Needs: We're Unstoppable!

A special contribution by guest blogger Rosemarie Rouse Rosemarie shared her story via our Stories of Hope questionnaire.
November 17, 2016 Read More

Topics: Stories of Hope

She's Shown Us Our Own Strength, Determination, Love and Acceptance

A special contribution by guest blogger Anne Fricke Anne shared her story via our Stories of Hope questionnaire.
November 10, 2016 Read More

Topics: Stories of Hope

Sleep Issues in PWS: Presentation by Dr. Thomas Scammell [VIDEO]

Many individuals with PWS experience significant disruption of daily life as a result of sleep issues. Daytime sleepiness, abnormal REM sleep, narcolepsy, and cataplexy are common sleep-related symptoms of PWS, however their underlying cause is unkno...
November 3, 2016 Read More

Topics: Research

Every Donation Will Be Matched Until Thanksgiving!

We need your help and there has never been a better time to DOUBLE your impact! From now until Thanksgiving, EVERY donation made to our organization will be MATCHED by Leon and Irina Shaulov.
November 2, 2016 Read More

Topics: News

Our Son Makes Everyone He Meets Feel Special

A special contribution by guest blogger Elizabeth DeSimone Elizabeth shared her story via our Stories of Hope questionnaire.
October 27, 2016 Read More

Topics: Stories of Hope

My Son Enriches My Life In Every Way

A special contribution by guest blogger Natalie Neto Natalie shared her story via our Stories of Hope questionnaire.
October 24, 2016 Read More

Topics: Stories of Hope

Roadmap for the Future: The PWS Research Plan 2017-2021

Prader-Willi syndrome is a complex genetic disorder affecting nearly every system in the body. A challenge with this level of complexity requires a well thought out strategy to overcome. The Foundation for Prader-Willi Research, with the input of com...
October 20, 2016 Read More

Topics: Research

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Contact Us

Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

FPWR
440 N Barranca Ave #3620
Covina, CA 91723

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