Foundation for Prader-Willi Blog (59)

Real-World Data, Real-World Evidence, and PWS

"Real-world data" and "real-world evidence" (RWD and RWE) are hot buzz words in the fields of healthcare and research. This is an emerging area of data acquisition and analysis, with the potential to transform clinical research and patient care. It i...

September 8, 2016 Read More

Topics: Research

Bearden Research Investigates Early Signs of Psychosis in PWS

Behavior and mental health issues are an important part of Prader-Willi syndrome (PWS). In particular, one of the most challenging aspects for families to face is the onset of psychosis (i.e., mental illness characterized by symptoms, such as delusio...

September 5, 2016 Read More

Topics: Research

Social Communication: Its Role In Behavior & Cognitive Development In PWS

In social communication, the ability to appropriately recognize and process facial expressions is critical to understanding others' emotional and mental state. People can often "read" emotions on someone's face, including happiness, sadness, fear, su...

August 29, 2016 Read More

Topics: Research

Growth Hormone Therapy for PWS

In multiple studies, human growth hormone (HGH) has been found to be beneficial for those with Prader-Willi syndrome. In June of 2000, growth hormone therapy for PWS was officially approved by the Federal Drug Administration (FDA) in the United State...

August 24, 2016 Read More

Topics: Research

The Gut-Brain Connection: Breakthroughs in Hunger & Satiety Signaling

There's been a lot of buzz in the scientific literature about the "gut-brain connection" — the two-way communication occurring between the brain and the gut. This communication can occur directly through nerve signals, and indirectly by hormones secr...

August 22, 2016 Read More

Topics: Research

Abnormal Sleep Patterns in PWS Are Focus of LaSalle's Research

Abnormal sleep patterns in PWS make sleep disorders common for people with Prader-Willi syndrome. These are associated with central and obstructive apnea, disrupted sleep, and excessive daytime sleepiness. But why exactly do individuals with PWS have...

August 9, 2016 Read More

Topics: Research

Prader Willi Behavioral Issues May Be Tied to Low GABA Levels in Brain

Adolescents and adults with PWS often struggle with temper outbursts, compulsive behaviors, and self-injurious behaviors such as skin-picking. These behavioral challenges impact the quality of life for those with PWS and for their families and caregi...

August 2, 2016 Read More

Topics: Research

Can PWS Interventions Be Delivered By Telehealth?

Telehealth, or the "delivery of health-related services and information via telecommunications" such as through a computer is a growing trend in health care. A recent report from a group at Michigan State University shows how their online program is ...

July 27, 2016 Read More

Topics: Research

Intellectual Disability Treatment: New Down Syndrome Possibilities

One of the fundamental questions in research for complex neurodevelopmental disorders such as PWS is – can the cognitive challenges of the disorder ever be improved using drugs or supplements? A decade ago, most scientists would have argued that the ...

July 21, 2016 Read More

Topics: Research

FPWR Blog

Categories

Real-World Data, Real-World Evidence, and PWS

Bearden Research Investigates Early Signs of Psychosis in PWS

Social Communication: Its Role In Behavior & Cognitive Development In PWS

Growth Hormone Therapy for PWS

The Gut-Brain Connection: Breakthroughs in Hunger & Satiety Signaling

Abnormal Sleep Patterns in PWS Are Focus of LaSalle's Research

Prader Willi Behavioral Issues May Be Tied to Low GABA Levels in Brain

Can PWS Interventions Be Delivered By Telehealth?

Intellectual Disability Treatment: New Down Syndrome Possibilities

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