Foundation for Prader-Willi Blog (59)

The Value of Patient Input and Perspective in Drug Development

Janet Woodock, MD, Director of the Center for Drug Evaluation and Research at the FDA, recently highlighted how the FDA is placing a high priority on patient input and perspective in the drug development process. The agency recognizes that patients, ...

January 9, 2017 Read More

Topics: Research

A Dream I Can Believe In

When I was pregnant with Lily I had all of these dreams of what it would be like to have a baby. I read all of the books on parenting I could get my hands on; books about what to expect while I was expecting, how to have the happiest baby on the bloc...

January 7, 2017 Read More

Topics: Stories of Hope

2016: Another Remarkable Year for Prader-Willi Research

FPWR community, 2016 was yet another remarkable year for Prader-Willi research! Our supporters have allowed FPWR to fund more research than ever before, taking us closer to treatments for our loved ones with Prader-Willi syndrome. Read below for a fe...

January 6, 2017 Read More

Topics: Research

PWS Clinical Trials Update - Part 2

Over the past 3 years we have seen a number of new companies investing in Prader-Willi Syndrome. This is in part because of PWS's orphan indication and the significant unmet medical need, but is also reflective of the steps we have taken as a communi...

January 4, 2017 Read More

Topics: Research

PWS Clinical Trials Update - Part 1

Over the past 3 years we have seen a number of new companies investing in Prader-Willi Syndrome. This is in part becuase of PWS's orphan indication and the significant unmet medical need, but is also reflective of the steps we have taken as a communi...

January 2, 2017 Read More

Topics: Research

My Child is My Inspiration: If He Can Do It, So Can I

A special contribution by guest blogger Karina O'brien Karina shared her story via our Stories of Hope questionnaire.

December 30, 2016 Read More

Topics: Stories of Hope

Molecular Insights and a New Target for Drug Development in PWS [VIDEO]

Columbia University Medical Center (CUMC) researchers have discovered that a deficiency of the enzyme prohormone covertase (PC1) in the brain may be linked to most of the neuro-hormonal abnormalities in Prader-Willi syndrome (PWS), a genetic conditio...

December 27, 2016 Read More

Topics: Research

I Learned from My Daughter That Life is About Love

A special contribution by guest blogger Chelsea Balumas Chelsea shared her story via our Stories of Hope questionnaire.

December 23, 2016 Read More

Topics: Stories of Hope

PWS Grants & Discoveries, Message to FDA on Drug Development [Webinar]

On December 14, FPWR gave its quarterly webinar reporting on our PWS grants, and on recent research discoveries. In the webinar, which you can watch below, I recapped a recent meeting at the FDA, shared information on the new grants we've funded, and...

December 21, 2016 Read More

Topics: Research

FPWR Blog

Categories

The Value of Patient Input and Perspective in Drug Development

A Dream I Can Believe In

2016: Another Remarkable Year for Prader-Willi Research

PWS Clinical Trials Update - Part 2

PWS Clinical Trials Update - Part 1

My Child is My Inspiration: If He Can Do It, So Can I

Molecular Insights and a New Target for Drug Development in PWS [VIDEO]

I Learned from My Daughter That Life is About Love

PWS Grants & Discoveries, Message to FDA on Drug Development [Webinar]

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