Topics: Stories of Hope
A special contribution by guest blogger Karina O'brien Karina shared her story via our Stories of Hope questionnaire.
Columbia University Medical Center (CUMC) researchers have discovered that a deficiency of the enzyme prohormone covertase (PC1) in the brain may be linked to most of the neuro-hormonal abnormalities in Prader-Willi syndrome (PWS), a genetic conditio...
Topics: Research
A special contribution by guest blogger Chelsea Balumas Chelsea shared her story via our Stories of Hope questionnaire.
Topics: Stories of Hope
On December 14, FPWR gave its quarterly webinar reporting on our PWS grants, and on recent research discoveries. In the webinar, which you can watch below, I recapped a recent meeting at the FDA, shared information on the new grants we've funded, and...
Topics: Research
We know that mental health is a critical part of quality of life for all individuals with PWS, and something every family wants to improve for their loved one with PWS. Two exciting projects below offer opportunities to contribute to PWS mental welll...
Topics: Research
A special contribution by guest blogger Jeanne Huffman Jeanne shared her story via our Stories of Hope questionnaire.
Topics: Stories of Hope
The Foundation for Prader-Willi Research (FPWR), in collaboration with FPWR-Canada and FPWR-UK, is thrilled to announce our second round of PWS research recipients for 2016! Eight outstanding projects were selected for funding, totaling $746,200 in s...
Topics: Research
A special contribution by guest blogger Heather Osterman Heather shared her story via our Stories of Hope questionnaire.
Topics: Stories of Hope
Many children with PWS are affected by early language delays. If those delays aren't addressed, the affects can be far-reaching, not just in school, but beyond. Research on these delays shows a number of therapies to be very effective, but it isn't r...
Topics: Research