Foundation for Prader-Willi Blog (53)

Human Growth Hormone Dosing for PWS

This article is adapted from a presentation by Jennifer Miller, Ph.D. Human growth hormone therapy for PWS been proven to improve characteristic delays in physical and social development, and the cognitive benefits of human growth hormone for PWS are...

July 10, 2017 Read More

Topics: Research

Your Child With PWS Can Have a Beautiful Life

A special contribution by guest blogger Loraine Hernandez Loraine shared her story via our Stories of Hope questionnaire. How has your child exceeded your expectations? With the horrible scenario at the hospital when she was born, I really didn't hav...

July 7, 2017 Read More

Topics: Stories of Hope

Reiter Studies PWS Genetics With Dental Pulp Stem Cells

You may have seen requests for parents to donate the lost baby teeth of their children with PWS for research. What can these baby teeth do for Prader-Willi research? The answer is that Dr. Lawrence Reiter has implemented a novel technique for studyin...

July 6, 2017 Read More

Topics: Research

Incidence of Autism In People With PWS Lower Than Previously Thought

The potential overlap between PWS and symptoms of autism spectrum disorder (ASD) has been the subject of discussion and research for some time now. In the past, research found estimates of autism in people with PWS to be as high as 41%. But on June 5...

July 5, 2017 Read More

Topics: Research

For This Dad, PWS Means Exceeding Expectations

A special contribution by guest blogger Blake Brenneman Blake shared his story via our Stories of Hope questionnaire.

June 30, 2017 Read More

Topics: Stories of Hope

FPWR Research Team Presents Latest Grants for PWS Studies [VIDEO]

On June 23, FPWR research staff members Theresa Strong and Jessica Bohonowych presented a webinar reviewing recent initiatives funded through FPWR. The webinar is available on video below. It includes an overview of newly funded studies, new opportun...

June 28, 2017 Read More

Topics: Research

Mom's Message to PWS Parents: Pride and Love Will Fill Your Heart

A special contribution by guest blogger Laura Capone Laura shared her story via our Stories of Hope questionnaire. Has your child exceeded your expectations? A million times yes! We were given a very low expectation for Tommy's future, but he is a wa...

June 23, 2017 Read More

Topics: Stories of Hope

Dr. Hof Looks for Link Between Brain Neurons and Mental Health in PWS

Cognition, social behavior, and decision-making are common challenges among individuals with PWS. The brain region that controls many of these functions is called the frontal lobe. To date, there has been little work on understanding differences in t...

June 21, 2017 Read More

Topics: Research

Tony Holland, Leader In PWS Research on Obesity, Satiety, and Behavior

There has been much recent interest in the Prader-Willi syndrome (PWS) community regarding vagus nerve stimulation, a novel approach to treat PWS behavior issues, which is being led by Dr. Tony Holland and supported by FPWR. In fact, Dr. Holland, a p...

June 14, 2017 Read More

Topics: Research

FPWR Blog

Categories

Human Growth Hormone Dosing for PWS

Your Child With PWS Can Have a Beautiful Life

Reiter Studies PWS Genetics With Dental Pulp Stem Cells

Incidence of Autism In People With PWS Lower Than Previously Thought

For This Dad, PWS Means Exceeding Expectations

FPWR Research Team Presents Latest Grants for PWS Studies [VIDEO]

Mom's Message to PWS Parents: Pride and Love Will Fill Your Heart

Dr. Hof Looks for Link Between Brain Neurons and Mental Health in PWS

Tony Holland, Leader In PWS Research on Obesity, Satiety, and Behavior

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