Foundation for Prader-Willi Blog (50)

Dr. Hof Looks for Link Between Brain Neurons and Mental Health in PWS

Cognition, social behavior, and decision-making are common challenges among individuals with PWS. The brain region that controls many of these functions is called the frontal lobe. To date, there has been little work on understanding differences in t...

June 21, 2017 Read More

Topics: Research

Mom of Triplets Celebrates Son's Progress, Finds Hope In PWS Research

A special contribution by Lindsey Larson, Host of Live Life Full Lewistown, IL Being a first time mom is hard. Having triplets makes it even more challenging. Add to that a rare diagnosis, and it’s ... well, interesting is the only word that I can fi...

June 16, 2017 Read More

Topics: Stories of Hope

Tony Holland, Leader In PWS Research on Obesity, Satiety, and Behavior

There has been much recent interest in the Prader-Willi syndrome (PWS) community regarding vagus nerve stimulation, a novel approach to treat PWS behavior issues, which is being led by Dr. Tony Holland and supported by FPWR. In fact, Dr. Holland, a p...

June 14, 2017 Read More

Topics: Research

A Father's Story: Fighting the PWS Battle With Shared Love, Clear Vision

A special contribution by guest blogger, dad, and One Small Step host Adam Larson An expecting father has crystal clear vision. You are at the moment when all you will ever amount to is about to be tested. All of your talents will be called upon and ...

June 9, 2017 Read More

Topics: Stories of Hope

Dr. Rudolph Leibel: Searching for PWS Causes at Molecular Level In Brain

Many may remember Dr. Rudolph Leibel’s presentation on stem cells and Prader-Willi Syndrome (PWS) at the FPWR Research Conference in November 2014. He also published a breakthrough discovery in the Journal of Clinical Investigation, with Lisa Burnett...

June 8, 2017 Read More

Topics: Research

Targeted Reactivation of Silenced PWS Genes as a Potential Therapy

All individuals with Prader-Willi syndrome (PWS) have at least one copy of the PWS region from their mother, but it is turned off through a normal biological process called genomic imprinting. Normally, the chromosome 15 that is inherited from the fa...

June 7, 2017 Read More

Topics: Research

Mom Sees Past Obstacles of PWS to Find Hope In Research and Community

A special contribution by guest blogger and One SMALL Step Washington, DC, co-host Dominique Deleage Our son Charlie is now 10 years old. We found out that he had PWS when he was three weeks old. We had never heard of the disorder. I still remember t...

June 2, 2017 Read More

Topics: Stories of Hope

Study Explores How and Why of PWS Severity, Mosaicism In PWS By UPD

Individuals with PWS present with a very broad range of severity of symptoms, which is why people often refer to PWS as a “spectrum" disorder. A new study funded by FPWR will help us understand how and why there are different degrees of PWS severity,...

May 31, 2017 Read More

Topics: Research

Study Uses Eye Tracking To Develop Biomarkers for Hyperphagia in PWS

Although hyperphagia (excessive appetite) is a hallmark of PWS, it's one of the most difficult features to accurately measure and characterize. Currently, the main tools in this area are questionnaires about food behavior and food interest. These can...

May 24, 2017 Read More

Topics: Research

FPWR Blog

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Dr. Hof Looks for Link Between Brain Neurons and Mental Health in PWS

Mom of Triplets Celebrates Son's Progress, Finds Hope In PWS Research

Tony Holland, Leader In PWS Research on Obesity, Satiety, and Behavior

A Father's Story: Fighting the PWS Battle With Shared Love, Clear Vision

Dr. Rudolph Leibel: Searching for PWS Causes at Molecular Level In Brain

Targeted Reactivation of Silenced PWS Genes as a Potential Therapy

Mom Sees Past Obstacles of PWS to Find Hope In Research and Community

Study Explores How and Why of PWS Severity, Mosaicism In PWS By UPD

Study Uses Eye Tracking To Develop Biomarkers for Hyperphagia in PWS

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