Foundation for Prader-Willi Blog (45)

PWS Stem Cell Repository to Accelerate Drug Development

FPWR is working to eliminate the challenges of PWS by speeding up development of two types of therapies: Genetic therapies seek to compensate for the lack of expression of the paternally expressed PWS genes on chromosome 15. Pharmaceutical therapies ...

November 9, 2017 Read More

Topics: Research

Education for Children With PWS — IEPs and More: Tanya Johnson [VIDEO]

This blog contains excerpts from My Journey through the Special Education System, a presentation by FPWR Board Member Tanya Johnson at the FPWR 2017 conference about education for children with PWS, including IEPs (individualized education programs) ...

November 1, 2017 Read More

Topics: Research

FPWR's Clinical Care Program for PWS: Priya Balasubramanian [VIDEO]

This blog contains excerpts from the Clinical Care Program for PWS Overview presented by research team member Priya Balasubramanian at the FPWR 2017 conference. You can watch the full presentation by clicking on the embedded video below. In case you ...

October 31, 2017 Read More

Topics: Research

Taking Charge and Changing the Futures of Our Children With PWS

A special contribution by One Small Step host Lisa Matesevac As we embark on hosting our 5th One SMALL Step event, I stop and think how this all got started for our family. Like most families, we are VERY busy. At different times, we are EXTRA busy. ...

October 27, 2017 Read More

Topics: Stories of Hope

Studies Show Benefits Of Growth Hormone Therapy For Adults With PWS

Children with PWS typically have growth hormone deficiency (GHD), and treating them with growth hormone has been shown to have beneficial effects on growth, body composition, motor function, and possibly cognitive development.

October 25, 2017 Read More

Topics: Research

FPWR Five-Year Research Plan: Dr. Nathalie Kayadjanian [VIDEO]

This blog contains excerpts from the FPWR Five-Year Research Plan Overview presented by research team member Nathalie Kayadjanian at the FPWR 2017 conference. You can watch the full presentation by clicking on the embedded video below. In case you do...

October 19, 2017 Read More

Topics: Research

Improving Social Skills In PWS: Elizabeth Roof [VIDEO]

This blog contains excerpts from Improving Social Skills In PWS, a presentation given by Elizabeth Roof at the FPWR 2017 conference. Her presentation of just over an hour covered two main topics: the behavioral phenotype of PWS and an online social s...

October 16, 2017 Read More

Topics: Research

The FPWR Grant Program: An Overview [VIDEO]

This blog provides a brief summary of the FPWR Grant Program Overview presentation given by research team member Theresa Strong at the FPWR 2017 conference. You can watch the full presentation by clicking on the embedded video below. In case you don'...

October 13, 2017 Read More

Topics: Research

How Schaaf-Yang Syndrome and PWS Are Related [VIDEO]

This blog provides a brief summary of the FPWR 2017 conference presentation about the ways in which Schaaf-Yang syndrome and Prader-Willi syndrome are related. The talk was presented by Drs. Christian Schaaf, Ryan Potts and Rachel Wevrick. You can wa...

October 11, 2017 Read More

Topics: Research, SYS

FPWR Blog

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PWS Stem Cell Repository to Accelerate Drug Development

Education for Children With PWS — IEPs and More: Tanya Johnson [VIDEO]

FPWR's Clinical Care Program for PWS: Priya Balasubramanian [VIDEO]

Taking Charge and Changing the Futures of Our Children With PWS

Studies Show Benefits Of Growth Hormone Therapy For Adults With PWS

FPWR Five-Year Research Plan: Dr. Nathalie Kayadjanian [VIDEO]

Improving Social Skills In PWS: Elizabeth Roof [VIDEO]

The FPWR Grant Program: An Overview [VIDEO]

How Schaaf-Yang Syndrome and PWS Are Related [VIDEO]

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