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FPWR Blog

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Two Silver Medals: A Child's Achievement Inspires Strength and Hope

A special contribution by guest blogger Allison Shelton Allison shared her story via our Stories of Hope questionnaire.
February 8, 2019 Read More

Topics: Stories of Hope

Schaaf-Yang Syndrome Research Plan 2019-2021

With the input of experts and parent advocates from the SYS community, a research plan has been developed to guide and accelerate SYS research over the next 3 years. The plan includes a brief overview of the ‘current state of research,' highlights cu...
February 7, 2019 Read More

ConSynance Therapeutics, Harmony Biosciences Join PWS Clinical Trials Consortium

The Foundation for Prader-Willi Research is pleased to announce the addition of ConSynance Therapeutics and Harmony Biosciences to the PWS Clinical Trials Consortium.
January 31, 2019 Read More

Topics: News

New Investigational Drugs for PWS Offer Hope [2018 CONFERENCE VIDEO]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also wat...
January 29, 2019 Read More

Topics: Research Blog

Using Games To Reduce Resistance To Change In PWS [2018 CONFERENCE VIDEO]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also wat...
January 11, 2019 Read More

Topics: Research Blog

PWS Behavior Panel Shares Helpful Findings [2018 CONFERENCE VIDEO]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also wat...
January 3, 2019 Read More

Topics: Research Blog

FPWR Announces Second Round of 2018 Grant Awards for PWS Research [VIDEO]

The Foundation for Prader-Willi Research (FPWR) announces a the funding of 11 Research Awards totaling more than $1,000,000. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and rel...
December 19, 2018 Read More

Topics: Research

Does Your Loved One With PWS Have Hyperphagia?

This guest blog was contributed by researchers Elisabeth Dykens and Elizabeth Roof of Vanderbilt University Does your loved one with PWS have hyperphagia? The answer isn't as simple as yes or no. Even if your loved one does not display the hallmark h...
December 5, 2018 Read More

Topics: Research

Town Hall Highlights PWS Research Achievements [2018 CONFERENCE VIDEO]

This blog is based on the Research Town Hall presented by the FPWR Research team at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've summar...
November 27, 2018 Read More

Topics: Research Blog

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Contact Us

Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

FPWR
440 N Barranca Ave #3620
Covina, CA 91723

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