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FPWR Blog

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From the CEO's Desk: Working Together to Grow Our PWS Research Investment

Our team recently presented a summary of our 2018 programs and 2019 plans to the FPWR board of directors and, in reflection, 2018 was a great year of progress in PWS research!
April 4, 2019 Read More

Topics: News

PWS Research Symposium Highlights [2018 Conference Video]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. If you don't have time to watch the full video, we've included a full transcript of the presentation below. Y...
March 28, 2019 Read More

Topics: Research Blog

PWS Clinical Trial Webinar: Carbetocin

March 21, 2019 Read More

PWS Registry Data: Friendships in PWS

Most people with PWS are social and enjoy spending time with family and friends. However, making and keeping friends can be difficult for people with PWS. Because of food issues, people with PWS often need supervision and monitoring, which can make i...
March 12, 2019 Read More

Topics: Research

PWS Clinical Trial Webinar: Diazoxide Choline Controlled Release (DCCR)

February 28, 2019 Read More

Is Oxytocin for PWS Beneficial? An Overview of Research

Researchers are making progress in evaluating the potential therapeutic benefit of oxytocin for PWS. Here, we review some of the most prominent research studies in this area and their implications for PWS.
February 27, 2019 Read More

Topics: Research

A Ray of Hope: Families Share Why They Love the FPWR Conference

Attending a conference means being around people who get it—they understand the journey you have been on with your child, personally, and with the world. It’s like seeing your family when you attend the FPWR Family Conference. Everyone, whether a new...
February 26, 2019 Read More

Topics: News

Vanderbilt Clinic Founder Reflects on Filling the Gaps In PWS Care

This guest blog was contributed by Dr. Jessica Duis, Pediatric Geneticist at Vanderbilt University Medical Center and author of A Multidisciplinary Approach to the Clinical Management of Prader–Willi Syndrome. One of the most common questions I hear ...
February 25, 2019 Read More

Topics: Research

Saniona Provides Update on Ongoing Phase 2a Study of Tesomet for PWS

Saniona recently published a press release with an update on their Phase 2a study of Tesomet for Prader-Willi syndrome. A member of the PWS Clinical Trials Consortium, Saniona is working with FPWR, PWSA-USA, leading PWS experts and other industry par...
February 20, 2019 Read More

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Contact Us

Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

FPWR
440 N Barranca Ave #3620
Covina, CA 91723

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