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FPWR Blog

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PWS Clinical Trial Webinar: Mindfulness for Temper Outbursts in PWS

A new study is now enrolling people with PWS ages 13 to 30 years old and their caregivers to participate in a study to evaluate the use of Mindfulness-based intervention for the treatment of temper outbursts. A live webinar was conducted May 6th whic...
May 7, 2019 Read More

Topics: Research

Improving Clarity of Speech in PWS [2018 CONFERENCE VIDEO]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also wat...
May 7, 2019 Read More

Topics: Research

PWS Clinical Trials Consortium Meets with FDA for a Critical Path Innovation Meeting

The PWS-Clinical Trial Consortium (PWS-CTC) met with FDA on November 19th for a 90-min session, to discuss the progress made in the last three years to overcome clinical trial challenges in PWS. With an increasing number of clinical trials in PWS, it...
April 25, 2019 Read More

Topics: News

A glimpse into the life of a high school senior, who also has PWS.

Gillian Segall is an 18-year-old high school senior from Chicago, IL who happens to have PWS. We asked Gillian to tell us a bit about her life as a high school senior and her plans for afterward. Graduating from high school is something that many kid...
April 22, 2019 Read More

Science Fireside Chat (Q & A): [2018 Conference Video]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also wat...
April 18, 2019 Read More

Topics: Research Blog

Getting the Right IEP for Your Student With PWS: Lessons from a Principal

Are you a new parent to the Individualized Education Plan (IEP) process and seeking to understand the journey ahead? Or a veteran to the IEP process and seeking tips and strategies to ease the experience?
April 15, 2019 Read More

Topics: News

Schaaf-Yang Syndrome: What Do We Know? [2018 CONFERENCE VIDEO]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also wat...
April 11, 2019 Read More

Topics: Research Blog

UConn and FPWR Create Stem Cell Biobank for PWS

A new collaboration between UConn Health and the Foundation for Prader-Willi Research will create a centralized, high quality biobank of stem cells to help researchers better understand Prader-Willi syndrome.
April 11, 2019 Read More

What We Are Learning from the PATH for PWS Study

[Ed. note April 2, 2021: The PATH for PWS Study is no longer open for enrollment.] PATH for PWS: Paving the Way for Advances in Treatments and Health People with PWS are at a greater risk of health complications and serious medical events than indivi...
April 5, 2019 Read More

Topics: Research Blog

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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440 N Barranca Ave #3620
Covina, CA 91723

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