Topics: Research
A special contribution by guest blogger Deb Cooper Deb shared her story via our Stories of Hope questionnaire.
Topics: Stories of Hope
Community members from coast to coast are finding easy ways to make supporting PWS research FUN! A 1-mile kids race, a friendly kickball tournament, an uncle's bike ride across America, and an individual Ironman are just four examples of our communit...
Topics: News
Paul Golub’s 30th anniversary working for Walmart in Athens, GA, was just around the corner, when his upper management approached him and asked what he would like to do to celebrate the occasion. After spending some time thinking about it, he remembe...
Topics: Stories of Hope
In 1869, scientists isolated DNA for the first time. In 1953, they identified its double-helix structure. In the late 1970’s bone marrow transplantation was introduced, and entire immune systems (genes) were replaced as means to cure some blood cance...
Topics: Research
The ability to regulate emotions is an essential skill for a happy life, and for many of us this can be challenging to accomplish! When left unmanaged, high levels of stress can lead to both mental and physical ailments which is why learning coping s...
Topics: News
I recently had the joy of attending the One SMALL Step walk in Washington, D.C. on June 1, 2019. Being that I am involved daily in the One SMALL Step community, often helping in the background with technology, logistics, communications and coaching, ...
Topics: Stories of Hope
FPWR works closely with several clinical trial sponsors in order to help companies understand the medical needs and challenges of PWS, provide input into study protocols and educate the community about trial opportunities. Most recently, FPWR Directo...
Topics: News
The Foundation for Prader-Willi Research announces our first round of Research Awards in 2019 totaling $786,000. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, ha...
Topics: Research
