Foundation for Prader-Willi Blog (36)

How a Modified Atkins Diet for PWS Changes the Microbiome [2019 CONFERENCE VIDEO]

Have you ever wondered what is the optimal diet for a person with PWS? We may not be able to answer that question just yet, but in this 29-minute video, Dr. Anne Scheimann from Johns Hopkins shares preliminary data from her study on the Modified Atki...

November 17, 2019 Read More

Topics: Research

Standards of Care for Adults and Children With PWS [2019 CONFERENCE VIDEO]

Whether you are new to PWS or a veteran, its important to stay current on standards of care. In this 57-minute video, Dr. Jessica Duis describes standards of care for both children and adults with PWS, covering topics such as supplements, oxytocin, c...

November 15, 2019 Read More

Topics: Research

Genetic Therapy and PWS — Researcher Fireside Chat [2019 CONFERENCE VIDEO]

Gene therapies for PWS have the potential to provide transformative treatments but much is still unknown in regards to the feasibility of a successful treatment. In this 53-minute video, Drs. Stormy Chamberlain and Jim Resnick give a brief overview o...

November 14, 2019 Read More

Topics: Research

Sensory Integration Therapy for PWS [2019 CONFERENCE VIDEO]

Most people with PWS struggle with sensory processing, either seeking or avoiding sensory input. In this 54-minute video, occupational therapists Ashley Waguespack and Jessica Boudreaux explain the sensory issues common to PWS, then dive into sensory...

November 13, 2019 Read More

Topics: Research

Two Moms Harvest Hope With 5K for PWS Research

While most of us spend Thanksgiving Day, relaxing, watching football or entertaining family, Rachael Fischer and Julie Foge rise before the sun to host the Harvesting Hope 5K run. Since 2015 these two amazing, determined women have hosted this family...

November 12, 2019 Read More

Topics: Stories of Hope

FPWR Announces Second Round of 2019 Grant Awards for PWS Research [VIDEO]

The Foundation for Prader-Willi Research announces our second round of Research Awards in 2019 totaling $708,577. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, h...

November 7, 2019 Read More

Topics: Research

2019 PWS Clinical Trials Panel [VIDEO]

The PWS Clinical Trials Panel presentation in the video below took place at FPWR’s 2019 Annual Research Symposium and Family Conference. The 90-minute session opens with a quick overview of the drug development process and is followed by presentation...

October 25, 2019 Read More

Topics: Research

DCCR Clinical Trial Should Continue, Says Data Safety Monitoring Board

Based on the review of data from more than 50% of patients enrolled, the Data Safety Monitoring Board has recommended continuing a phase III clinical trial of DCCR for PWS. The trial, called DESTINY PWS, is a randomized, double-blind, placebo-control...

October 18, 2019 Read More

Topics: Research

Stages of PWS Drug Development Overview [VIDEO]

Drug development is a long and costly process that can take up to 15 years and cost up to one billion dollars! In this 7-minute video, Dr. Theresa Strong discusses the stages of PWS Drug Development. Don't have time for the full presentation? We've c...

October 16, 2019 Read More

Topics: Research

FPWR Blog

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How a Modified Atkins Diet for PWS Changes the Microbiome [2019 CONFERENCE VIDEO]

Standards of Care for Adults and Children With PWS [2019 CONFERENCE VIDEO]

Genetic Therapy and PWS — Researcher Fireside Chat [2019 CONFERENCE VIDEO]

Sensory Integration Therapy for PWS [2019 CONFERENCE VIDEO]

Two Moms Harvest Hope With 5K for PWS Research

FPWR Announces Second Round of 2019 Grant Awards for PWS Research [VIDEO]

2019 PWS Clinical Trials Panel [VIDEO]

DCCR Clinical Trial Should Continue, Says Data Safety Monitoring Board

Stages of PWS Drug Development Overview [VIDEO]

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