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FPWR Blog

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Why I Believe We Are Entering a Golden Age of Medicine

In 1869, scientists isolated DNA for the first time. In 1953, they identified its double-helix structure. In the late 1970’s bone marrow transplantation was introduced, and entire immune systems (genes) were replaced as means to cure some blood cance...
June 27, 2019 Read More

Topics: Research

PWS Mindfulness and Meditation Trailblazer Singh To Speak at 2019 Conference

The ability to regulate emotions is an essential skill for a happy life, and for many of us this can be challenging to accomplish! When left unmanaged, high levels of stress can lead to both mental and physical ailments which is why learning coping s...
June 25, 2019 Read More

Topics: News

Camaraderie & Joy : Walking in Washington, DC

I recently had the joy of attending the One SMALL Step walk in Washington, D.C. on June 1, 2019. Being that I am involved daily in the One SMALL Step community, often helping in the background with technology, logistics, communications and coaching, ...
June 12, 2019 Read More

Topics: Stories of Hope

Dr. Theresa Strong Joins Scientific Advisory Board of Saniona

FPWR works closely with several clinical trial sponsors in order to help companies understand the medical needs and challenges of PWS, provide input into study protocols and educate the community about trial opportunities. Most recently, FPWR Directo...
June 3, 2019 Read More

Topics: News

FPWR Announces First Round of 2019 Grant Awards for PWS Research [VIDEO]

The Foundation for Prader-Willi Research announces our first round of Research Awards in 2019 totaling $786,000. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, ha...
May 22, 2019 Read More

Topics: Research

PWS Clinical Trial Webinar: Mindfulness for Temper Outbursts in PWS

A new study is now enrolling people with PWS ages 13 to 30 years old and their caregivers to participate in a study to evaluate the use of Mindfulness-based intervention for the treatment of temper outbursts. A live webinar was conducted May 6th whic...
May 7, 2019 Read More

Topics: Research

Improving Clarity of Speech in PWS [2018 CONFERENCE VIDEO]

This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. In case you don't have time to watch the full video, we've included a full transcript below. You can also wat...
May 7, 2019 Read More

Topics: Research

PWS Clinical Trials Consortium Meets with FDA for a Critical Path Innovation Meeting

The PWS-Clinical Trial Consortium (PWS-CTC) met with FDA on November 19th for a 90-min session, to discuss the progress made in the last three years to overcome clinical trial challenges in PWS. With an increasing number of clinical trials in PWS, it...
April 25, 2019 Read More

Topics: News

A glimpse into the life of a high school senior, who also has PWS.

Gillian Segall is an 18-year-old high school senior from Chicago, IL who happens to have PWS. We asked Gillian to tell us a bit about her life as a high school senior and her plans for afterward. Graduating from high school is something that many kid...
April 22, 2019 Read More

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

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Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

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Covina, CA 91723

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