A new collaboration between UConn Health and the Foundation for Prader-Willi Research will create a centralized, high quality biobank of stem cells to help researchers better understand Prader-Willi syndrome.
[Ed. note April 2, 2021: The PATH for PWS Study is no longer open for enrollment.] PATH for PWS: Paving the Way for Advances in Treatments and Health People with PWS are at a greater risk of health complications and serious medical events than indivi...
Topics: Research Blog
Our team recently presented a summary of our 2018 programs and 2019 plans to the FPWR board of directors and, in reflection, 2018 was a great year of progress in PWS research!
Topics: News
This blog is based on a presentation at the FPWR 2018 conference. You can watch the complete presentation by clicking on the embedded video. If you don't have time to watch the full video, we've included a full transcript of the presentation below. Y...
Topics: Research Blog
Most people with PWS are social and enjoy spending time with family and friends. However, making and keeping friends can be difficult for people with PWS. Because of food issues, people with PWS often need supervision and monitoring, which can make i...
Topics: Research
Researchers are making progress in evaluating the potential therapeutic benefit of oxytocin for PWS. Here, we review some of the most prominent research studies in this area and their implications for PWS.
Topics: Research
Attending a conference means being around people who get it—they understand the journey you have been on with your child, personally, and with the world. It’s like seeing your family when you attend the FPWR Family Conference. Everyone, whether a new...
Topics: News
