Foundation for Prader-Willi Blog (27)

4 Reasons to be Excited for PWS Research in 2021

My son with PWS turns 12 years old this year. He experiences many of the challenges of PWS and, like every parent, I dream of the day when he can live a FULL and independent life. This is why I am as excited as ever as we enter 2021 …

January 5, 2021 Read More

Topics: Research

FPWR Announces Second Round of 2020 Grant Awards for PWS Research

The Foundation for Prader-Willi Research announces our second round of Research Awards in 2020 totaling $666,566. FPWR is dedicated to supporting research that advances the understanding and treatment of Prader-Willi syndrome (PWS) and to that end, h...

December 29, 2020 Read More

Topics: Research

Return of Results: Destiny-PWS by Soleno Therapeutics [2020 CONFERENCE VIDEO]

In this hour-long video, the CEO of Soleno Therapeutics and researcher Dr. Jennifer Miller go into detail on the design and results of the DCCR phase 3 clinical trial. The session also covers next steps for making the drug available to treat PWS, dis...

December 28, 2020 Read More

Topics: Research

2020 PWS Research Publications

Despite the enormous challenges of 2020, PWS scientists and clinicians persevered and made tremendous headway in understanding PWS, advancing new treatments, and improving care. New insights into the biology of PWS have identified new targets for dru...

December 23, 2020 Read More

Topics: Research

Return of Results: CARE-PWS by Levo Therapeutics [2020 CONFERENCE VIDEO]

In this 36-minute Return of Results session, David Ryman of Levo Therapeutics provides insights into the Phase 3 clinical trial of carbetocin, including next steps for making the drug available to treat hyperphagia and anxiety behaviors in PWS. This ...

December 15, 2020 Read More

Topics: Research

Study Reveals Features of Schaaf-Yang Syndrome Adult Phenotype

A new study sheds light on the clinical characteristics of Schaaf-Yang Syndrome in adults. In addition to other important findings, the study suggests there is more overlap between PWS and Schaaf-Yang Syndrome than previously understood, and confirms...

December 14, 2020 Read More

Topics: Research

Soleno Therapeutics Provides Regulatory Update on DCCR for the Treatment of Prader-Willi Syndrome

Soleno Therapeutics continues to progress their novel therapeutic, DCCR, forward as a potential treatment of hyperphagia in PWS. On November 12th, Soleno met with the FDA to discuss the best path forward for DCCR. In their most recent press release, ...

December 11, 2020 Read More

FPWR Funded Researcher Mailing List

Our FPWR funded researchers are working hard to eliminate the challenges of PWS. How about spreading some cheer this season by sending a holiday card thanking them for their work? Mailing addresses for FPWR's currently funded researchers are below or...

November 30, 2020 Read More

What's Happening in PWS Research [2020 CONFERENCE VIDEO]

Join Dr. Theresa Strong and the FPWR Research Team to learn more about what is happening in PWS research. In this 68-minute video, the FPWR Research Team members summarize highlights, recent findings and the latest on PWS research and available resou...

November 25, 2020 Read More

Topics: Research

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4 Reasons to be Excited for PWS Research in 2021

FPWR Announces Second Round of 2020 Grant Awards for PWS Research

Return of Results: Destiny-PWS by Soleno Therapeutics [2020 CONFERENCE VIDEO]

2020 PWS Research Publications

Return of Results: CARE-PWS by Levo Therapeutics [2020 CONFERENCE VIDEO]

Study Reveals Features of Schaaf-Yang Syndrome Adult Phenotype

Soleno Therapeutics Provides Regulatory Update on DCCR for the Treatment of Prader-Willi Syndrome

FPWR Funded Researcher Mailing List

What's Happening in PWS Research [2020 CONFERENCE VIDEO]

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