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FPWR Blog

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Navigating Your Insurance Coverage with PWS [2020 CONFERENCE VIDEO]

Brian Kalasek is both a father of a young son with PWS and VP of Special Risk for Mutual of Omaha insurance company. In this 76-minute presentation, he shares successful strategies for maximizing health insurance benefits and estate planning — inform...
February 22, 2021 Read More

Topics: Research

Deconstructing Anxiety in PWS [2020 CONFERENCE VIDEO]

In this 88‑minute video, Dr. Deepan Singh discusses what anxiety looks like in PWS, what leads to it, and how can it be treated. Learn from this PWS mental health presentation, which concludes with Dr. Singh answering questions from the audience at t...
February 10, 2021 Read More

Topics: Research

Paving the Way for Treatments for PWS

In the last 5 years, more than 15 human clinical trials have taken place evaluating possible treatments for PWS. FPWR has been closely involved in each and every one: contributing the patient perspective to aspects of study design, funding or helping...
January 26, 2021 Read More

Topics: Research

IMPACT 2020

In 2020, more than 9,500 donors supported PWS research and our mission to eliminate the challenges of PWS. We would like to thank all of our supporters: everything we do is made possible by you! Here are just a few of our accomplishments from this pa...
January 19, 2021 Read More

Topics: Research

PWS Probiotics Research Addresses Constipation, Abdominal Fat and More

Two recently released studies represent good first steps to identifying possible uses of probiotic supplementation in PWS. The studies looked at effects of probiotic use on constipation, abdominal fat, fasting insulin and insulin resistance levels, w...
January 12, 2021 Read More

Topics: Research

Inversago Pharma Receives Rare Pediatric Disease Designation for INV-101 for the Treatment of PWS

January 11, 2021 Read More

Topics: Clinical Trials Opportunities

The Global PWS Registry Needs YOU to Update Your Surveys!

2021 brings new opportunities to learn even more about PWS and improve the health of those living with PWS. De-identified data from the Global PWS Registry is actively being used to help PWS physicians understand medical problems in PWS, provide scie...
January 8, 2021 Read More

Take Action for PWS Research Fundraising Panel [2020 CONFERENCE VIDEO]

If you value PWS research and want to help find treatments for PWS, join us for a panel of parents and hear how they've taken action in their own unique ways. In this 50‑minute video, active PWS parents and fundraisers talk about how they've gotten c...
January 7, 2021 Read More

Topics: Research

Radius Health Announces Plans for Pivotal Trial of Synthetic CBD

Radius Health has announced its acquisition of RAD011, a synthetic cannabidiol oral solution, which may be a potential treatment for hyperphagia in people with Prader-Willi Syndrome. The Company plans to initiate a pivotal Phase 2/3 study for patient...
January 6, 2021 Read More

About FPWR

The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3).

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Our Mission

The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Contact Us

Foundation for Prader-Willi Research
Phone: 888-322-5487
Email: info@fpwr.org

FPWR
440 N Barranca Ave #3620
Covina, CA 91723

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