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Aardvark Announces Rare Disease Designation and Expands Ongoing Phase 2 Trial

August 3, 2023

Aardvark Therapeutics, a clinical stage biopharmaceutical company, has reported receipt of a Rare Pediatric Disease Designation in Prader-Willi Syndrome (PWS) from the FDA for its lead program ARD-101. This designation means Aardvark is eligible for a Rare Pediatric Disease Priority

New PWS β-Cell Model Reveals Details Underlying Insulin Secretion Defects

July 25, 2023

Sugar glucose is the body’s primary source of energy. Maintaining a healthy level of glucose in blood (not too high or too low), so that it can be delivered to all the other tissues of the body, is regulated by

Exciting New Treatment May Reduce Disruptive Behaviors in PWS

July 25, 2023

Evidence from FPWR-supported studies shows that Vagus Nerve Stimulation (VNS) may reduce temper outbursts and other disruptive behaviors in individuals with PWS. With your support, FPWR is taking the steps needed to advance a clinical trial of a VNS device

Harmony Biosciences Announces Phase 3 Study of Pitolisant

July 20, 2023

Harmony Biosciences has announced plans to begin a Phase 3 study of Pitolisant for individuals with Prader-Willi syndrome ages 6 and up in the 4th quarter of 2023. This announcement is made following a positive end-of-phase 2 meeting with the

Partnership with CombinedBrain Establishes Biorepository for PWS & SYS

July 19, 2023

Biorepositories play a crucial role in rare disease research, serving as central locations for collecting, storing, and distributing samples such as tissues, blood, and cells. The Foundation for Prader-Willi Research, in partnership with COMBINEDBrain, has established PWS and SYS biorepositories

PWS Registry Data: Dental Issues [INFOGRAPHIC]

June 26, 2023

Dental issues in PWS can result from symptoms directly related to PWS, such as low saliva production, combined with challenges that individuals with special needs may have with maintaining good oral hygiene. Here, we focus on data from the Global

FPWR-Funded Postdoc Will Investigate the MAGEL2 Gene

June 14, 2023

Drug development for new therapies begins with research and discovery. To treat PWS (Prader-Willi syndrome) and SYS (Schaaf-Yang syndrome), we need to understand the differences between individuals with these conditions and typical individuals, right down to the cellular level. Once

‘He Shows Me Everyday What a True Superhero Looks Like’ Says PWS Mom

May 31, 2023

A special contribution by guest blogger Heather Osterman. Max came into the world with a bang...or more accurately, a limp body, not breathing, and blue. I went from being induced, since Max was quite cozy where he was, to a

Innovative FPWR-Funded Projects Receive Additional Funding

May 23, 2023

FPWR’s grant program focuses on supporting innovative, high risk/high reward research in its early stages, with particular emphasis on supporting projects that will lead to new treatments for PWS. One important objective of the grant program is to provide funding

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